Hey I’m new to this but just needed to talk to people in the same situation! I’ve been having symptoms for a while now and I just wondered if anyone else experiences the same.
i have tingling in my hands, arms, legs and face. Burning pain in my legs. Headaches. I’m exhausted like I literally can’t do anything some days. I keep dropping things. I have real difficulty getting words out sometimes it’s like I know what I want to say but I just can’t say it, this is happening more regularly. Frequent urination at night. Visual disturbances, I have been diagnosed with optic nerve swelling. Sensations of something popping or cold water dripping on my arms, legs and face. Difficulty swallowing and some days feel like there’s something stuck in my throat. Chest pain where it feels like someone is sitting on my chest this only lasts an hour or two but I could cry! There’s more but they’re the most frequent!
I have got an MRI this week and my gp has ordered more blood tests, I guess I’ll get more answers then. I’m still waiting for an appointment with the neurologist (an urgent referral takes about 6 weeks).
I just wondered if it could be MS, it has been mentioned to me and I just wondered if anyone can shed any light on these things.
sorry for the long post, it’s driving me mad now I just want to get up one morning and feel okay again!
hi ashlie
your symptoms certainly sound like ms or some other neurological problem.
good luck with your MRI
CAROLE X
Thank you for your reply Carole, have you been diagnosed with ms? If so how did you get diagnosed?
Regards
ashlie x
Almost anything could be MS… but yup, that sounds like something similar to me.
My personal diagnosis took months of people telling me that there wasn’t an issue and I wasn’t ill at all (after half my body went numb and I lost control of it) for me it was an observant nurse in A+E after I started losing control in my legs aswell. He did the same tests as everybody else, but was the only person who realised that I wasn’t an 80 year old woman but a young one, so should have responded much better. One MRI later and instant diagnosis. Followed by months of waiting to discuss treatment.
Given that it’s nearing May the fourth, I’ll be annoying and suggest for the next few weeks (until the doc gets back to you with the MS results) that you imagine yoda following you saying “Patience my young padawan” .
The NHS may take a while to get going, but once it’s started and you have a diagnosis you should notice it getting much better. Sadly there’s just no rushing this part of the process.
I’ll cross my fingers for you that a diagnosis, of something or other is soon in the coming, as clear cut as can be and that whatever it is can be dealt with.
Random kind thoughts.
ashlie
you asked about how i came to be diagnosed.
winter 2007 i started with pins and needles in my right foot.
a locum GP presribed thiamine and this got rid of the pins and needles.
whoopee!
however after one month they came back in both feet and right hand.
my GP who was absolutely brilliant referred me to neurology.
the neurologist who does outreach in my area was also brilliant.
he listened to everything i told him, had an MRI done and texted me to tell me the results.
i got my diagnosis just after the one MRI which makes me think i must have had it for a long time.
looking back, there has always been unusual symptoms.
i got my diagnosis in october 2008.
carole x
Hi I am in the same boat at the minute. Mine started with pins and needles, dropping things and falling over and slowly increased to internal shaking, headaches, vision loss and more. My Gp referred me to a neurologist as he said it was possible ms. I had my appointment with the neurologist and she was absolutely horrible to me practically told me it was all in my head but referred me for an MRI. Well I had the MRI 4 weeks ago now and no results yet. I spoke to neurology and they said they can’t give me results over the phone, I have to wait for a letter. So not just a horrendous wait. My symptoms aren’t too bad at the minute, only the headaches vision problems, constant urination and some numbness but at least the shaking has stopped.
That is awful having to wait over four weeks for your results. I had my MRI scan last week and was told I would get result in two weeks time. I would contact your GP and see if he has had your result.
Spoke to my GP and nothing yet so still waiting
Sounds good to me.
On a serious note I only have one symptom similar to you. That is the frequent trips to the loo. Hopefully that is under control now after a trip to the doctors. He put me on Vesicare 5mg for a month. That cured the urgency but the frequency was still the same. Im now on Vesicare 10mg and that has cured the frequency as well. Feeling Im in charge again.
Scudger thanks for the information about Vesicare.