Special Christmas wishes to you all who are still living with a big fat ? on their bonces!
Ive had one of those, on and off for 16 years now! I was mis-diagnosed with PPMS for several years. Then the diagnosis changed to something else, then back to PPMS, then to something else. My world was tossed upside down more than once! Ive seen 16 different neuros. On first meeeting each of them, their interest and concern for my case seemed hopeful…sadly however, only a small handful of them really helped. i`ve gone through a battery of tests and still have no complete diagnosis.
Please take heart everyone, fight on as best you can and always remember, you are all very important people. Dont let anyone demean you. Seek help where you can. I`ve had to seek out help for myself. But once that help was found, I received invaluable support, either in the way of equipment, advice and physical support.
Sometimes it was difficult, sometimes it came to nothing. But even when the struggle was getting me down, I would go to bed for a day or 2, then get up ready to fight on.
Its been a rollercoaster of a ride............my knuckles turned white as white on occasion. Life in a wheelchair is better than a life of nasty falls, knackered legs from trying to keep upright, without my wheels, id be both bed and house bound! Even my hoist is one of my best friends!
Some people have asked me where I found the courage to keep going and be upbeat…I guess the answer is partly because my natural demeanour is to be bubbly, and partly because I love life, my family, my friends.
I`ll leave you with a slogan I often use;
I may be broken, but im still here`.
Merry Christmas to you all.
much luv, Polly xxx