Hi Bracknagh and big welcome to the board.
You have MS. There’s no other way to say it. There is no way any neurologist would give you an MS diagnosis (dx) unless they were absolutely sure of it. It’s for that reason that so many people spend time in limbo waiting for a dx or why some of us have a lumbar puncture to confirm it.
If a neurologist has confirmed you have MS from MRI results, then believe me you have it. You are no doubt experiencing some denial. That’s normal and natural. It’s a hell of a lot to get your head round and thinking that ‘they’ are wrong, or they’ve made a mistake, or you need another test to confirm it, is all part of the course. So I’m sorry to be so blunt, but you do have MS.
If they are considering steroid treatment, then they are thinking it might be relapsing remitting MS (RRMS). Steroid treatment doesn’t help with progressive MS. But it often takes a while for them to work out what type of MS you have. They might be waiting to see if you go into remission, or they might try the steroid treatment to see if it helps, if it does, you’ll get a dx of RRMS.
Your back pain could be a number of things. Secondary pain, which is pain not caused directly by MS but is caused by something else the MS is causing… Best example is if your walking gait is a problem because of MS, then you can get pain in muscles because of the gait. That is secondary pain.
It could be MS hug. It can actually affect any part of the torso and can also be just on one side, but hug tends to come and go and not be ongoing as yours is. Discuss the pain when you next see your neuro. Some pain can be helped by physiotherapy, but sorry to say some pain just hangs around. Different drugs can help so it’s important to discuss it with neuro.
MS is hard to come to terms with at first, but believe me it does get easier. Give it time. Take it one day at a time. Deal with symptoms you have today and try not to worry about what might happen in the future. MS is different for all of us so you will never have all the symptoms of MS and on other hand you might get some that you didn’t expect.
This is a great place for advice, support and friendship so I’m very pleased you found us.
Hope this helps. It probably will be hard to read and I’m sorry about that. Feel free to ask questions.