Ok so I find this very hard to explain and I am hoping some of you can relate and understand what I mean.
Since a relapse last June my right leg is very weak. It is ok if I am pottering around the house. I does feel more tired than the other but it does work. It’s only when I try and “walk” properly that it goes funny. For instance, when I go out my front door, and try and walk at normal pace it goes funny. By the time I am leaving my driveway it goes very weak and this may seem a weird way to explain it but it feels like a tv channel that is not tuned in??? I know that sound crazy but thats what it feels like. If you have ever had a dead leg and it starts waking up. Before the pins and needles start it’s weak, tingly and even tickly! This is on top f the intense buzzing that starts from my waist right down my leg. It just doesnt hold me up. If I walk very slowly it can be ok for longer but not long.
Now my question is, if anyone has any idea what I am talking about…I have a member of the Physical disabilty team coming to do physio with me next week. What will they be able to do as it’s not muscle weakness. This is because of my spinal lesion so don’t know if they will be able to give me any help.
Another question is about DLA. I have applied and think I am intitled to the middle rate care BUT “should” this make me eligable for the mobility part. I’m not asking if I will get it as I know many people are turned down just if I should be. I can not go anywhere that involves walking. I can only walk around a shop with a trolly and snails pace and can not go to the park with my daughter incase she runs away.
Days that I over do things it’s far worse and when ill etc.
Thanks in advance,