Hi all, started Kesimpta yesterday and I was surprised at how quickly the side effects cleared up. The way the side effects were described I thought it was going to be like the AstraZeneca Covid vaccine but it was nowhere near as bad! Initially I felt weird and high, a little headache followed along with fatigue and about 6 hours later my bones hit as if I had flu but it passed after an hour or 2. I had the first injection at 11am and by 7 I felt better than before I took it (I wasn’t feel great beforehand)
Today I feel tired but not fatigued I did wake up a fair bit feeling hot and then my 2 year old got very chatty in the middle of the night for some reason.
But overall positive experience and I have high hopes. The ms symptoms have been pretty scary lately.
I hope this helps someone who’s just about to start Kesimpta
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That’s a very positive response. Good to hear, as when you look online there’s so much negativity. I started in October, and believe it’s really helping my MS and have had good results back from my blood tests. I wish you well on kesimpta
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Thank you for your reply it’s really comforting to know it’s working out well for you! Have you had any infections? Or caught colds more easily?
I’ve just got over a chest infection but it’s actually been 3 years since I’ve had one. Just unlucky my toddler was coughing in my mouth and up my nose with his cold haha!
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I had a bad UTI just before starting kesimpta, but I’ve been fortunate since and not had anymore infections. But my allergies have got worse to certain foods and certain medications.
It’s harder when you have a little one, hopefully you’ll stay clear. We are all different, and maybe your toddler has made you more resilient to the germs.
Keep positive, as long as it slows down progression and improve your quality of life! 
Tbh, I’ve been self catheterising 3x daily since August and it’s really helped. I’ll be happy if things continue as they are, as long as I can still walk, well with a stick and foot brace,lol. Thank you, and I hope your kesimpta journey is good to you too for no infections . I doubt I’ll see a cure I’m older than you, but you never know.
Any improvement/ avoidance of relapses is a huge positive. I grew up with my grandma having MS it was horrible to watch, and I didn’t see her very regularly so the progression in my eyes was severe. But she had it in a time where there wasn’t any treatments. So I just keep telling myself I am luckily to be in a time of treatment to slow down progression.
Everyday there are new breakthroughs so .
I hope you continue without any further progression. Take care x
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I’ve not had anyone in my family have MS, but I was adopted from a very young age so don’t really know. As long as it continues to slow down progression I’ll be ok with that, and really hope it helps you the same especially with your young family around you. It’s horrible how it takes so much from you. Yes I’m grateful to be on treatment, it’s a shame it’s such a battle to get to this point.
I wish you well and kesimpta helps you like it’s helping me. X
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