Starting Kesimpta as first treatment for RRMS

Hi all, I was just looking for a bit of background and advice if possible? I am due to start on my first MS treatment of Kesimpta since my diagnosis a few months ago and was just wondering how others got on with this drug? Did anyone experience many side effects at all? How are you finding the drug now for those that have been on it a while? Many thanks in advance :slightly_smiling_face:

Hi I started Kesimpta back in April this year and am currently on my 3rd chest infection. Unfortunately when I took the first injection I had an infection lurking in the background and it completely knocked my immune system right off. If I had of had my bloods checked for infection markers then the first injection would never have been taken, hindsight and all that! Bloods taken yesterday and no infection markers present so I am taking Kesimpta injection tomorrow, better with it than without. After the first injection I got the shakes (horrible) and then was very sick but that was expected.
Good luck with your injection.

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Iโ€™ve been on Kesimpta for 18 months. I had bad shivers after the first dose, so make time to go to bed and sleep it off. The next 2 doses were better, then all good and no side effects. Good luck

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Thank you Lulu! Do you think itโ€™s helping with your overall MS symptoms at all? I just took my first dose last night and woke up in the night with horrible flu-like aches and pains but this morning it seems to be gradually subsiding which is good!

Thanks Phil, are you finding the Kesimpta is helping with your symptoms at all?

Short answer, no. I see Kesimpta as prevention against future damage/relapses. So still have some of original symptoms as pseudo relapses if unwell, tired etc

I also had my 2nd shot this Thursday - how are you finding it all in all?

When you say shield, is that initially or for always? Iโ€™m about to start soon and Iโ€™m really not sure I understand all the ramifications of doing so.