Hi folks. I’m about to start Kesimpta after 11 almost symptom free years. I’ll try to update on here after each jab. Would also welcome any experiences or advice from fellow Kesimptarians. Thanks!
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Hi
Hope you are doing ok . I am in the process of switching from Gilenya to Kesimpta and would be interested in how you’re doing ?
Thank you in advance
Hey Smurf still not started as awaiting drug arrival! Will post as soon as I’ve started.
Hi
Hopefully delivery sorted for you now .
I am waiting for them to tell me when to stop Gilenya.
Please keep us updated on how it’s going .
Thank you
So, I started 2 days ago. Took paracetamol and acrivastine (Benadryl) an hour before. Jab itself totally painless. Really bad fever and shakes after about 7 hours. Slept it off and more or less fine the next day. No injection site symptoms at all. Roll on next week! Thanks for all comments and advice. Btw the social distancing advice seems a bit extreme. Does anyone else follow it?!
day 5 - quick update. felt ok ish day after jab, now just a bit weary on day 5. bit of a headache, and strange itching all over for about 2 hours on day 2. Otherwise fine!
Hello, I am thinking of starting Kesimpta, I have recently been diagnoses and this is one of my options. I’m curious to know how you’ve been with it since starting?
Suzanne
Ok day 8 - second jab done about an hour ago. Dead easy to inject and painless. So far no side effects but will update tomorrow.
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Hi! So far all has been as per the blog. Have felt a bit tired and am wondering about long term infection risks but any treatment that flattens the immune system is going to create that risk I guess. The jabs are dead easy and it’s nice to feel in control of oneself.
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Hi
Glad things are going ok .
I will not start until after Christmas now as I have to stop Gilenya for 4 weeks first ( vert nervous)
Thank you for sharing your experience and please keep us updated.
Take Care
Thank you. I like the idea of feeling more in control but still a bit out of my depth with it all. I hope it continues to go well for you.
Honestly you’re no more out of your depth than any of us - certainly me! I’ve got no idea what I’m doing and my main strategy is ‘pretend you don’t have ms’. If they’ve offered you a drug choice pick one based on lifestyle and what you feel able to do, and just see how it goes. You can always change. Good luck!
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End of day 9 - day after second jab. Just weary and strangely wired and a bit non specific anxious. Did a les mills class and played tennis so can’t be that bad.
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Update. Jab 3 was 2 days ago. Went for stomach which was fine but legs are better! Slight fever, headache the following day but feels easy and routine. So far so good. I suppose I may never know if it actually works….
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Final update (I hope!): jab 4 (ie first monthly jab) 2 days ago. Right leg dead easy slight prick. Took paracetamol and piriteze an hour before. Virtually no side effects. Maybe a tiny bit tired the day after. Life feels great!
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I have just read through your Kesimpta trials and you have really really reassured me. I am due to start it on 11th September (2023) . I am newly diagnosed at 53! Go figure - I can’t 
. I note this is from 6 months ago- so how are you now 6/7 months in.
I am being pushed to have a load of vaccines- did you have them
Thanx
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Hello hilts. I’m totally 100 percent fine and if anything I feel healthier and less likely to get a cold or infection than before. Might all be placebo effect but who cares.
I didn’t have any vaccines apart from being offered Covid booster early and having the flu jab for first time. That might have been because I was already vaccinated so can’t comment.
Final thought/advice - don’t be defined by your ms. I have done my very best to ignore/forget it and not attribute every stumble or lost tennis match to it! I know some cannot do that, and have it a lot worse than me. But apart from being a cool conversation stopper, ms isn’t really a big part of me/my life.
Good luck on kesimpta and brace for jab 1. After that it’s a breeze.
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Hi, I’m new to this forum, I was diagnosed with ms in 2009. I’m currently taking Tecfidera and have been since 2017, a recent mri has shown new lesions so I’ve been offered some new treatments to try, kesimpta was one of them and this is the route I’m considering going down. I’m very nervous about changing my treatment but I know it’s in my best interest. I’m just looking for some reassurance from others taking kesimpta.
Before starting Tecfidera I was the one who would read the forums but never felt I could write on them myself. It was such a help reading things from others going through similar experiences when I felt so alone.
I now feel able to speak out to others going through the same.
Thanks in advance to anyone who can share with me about their experience of kesimpta. 
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Hello,
Thanks for starting this Kesimptanian blog: I’m due to start treatment by late August.
After reading through your posts, the next day achy feeling after injection, reminds me of Avonex; I previously did a nine year stretch with that DMD.
I’m looking forward to joining you Ofatumumabers.
Best,
JP
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I have the headache today too! 4 days after first dose. I too had a shocking night the day I took it but like you woke up largely fine.