Today is my first post. I’m one of the many with a long list of symptoms but am undiagnosed, just feel that my symptoms may fit, yet I know it could well be something else, just know I’m not right! Just in the middle of mris, neuro consults etc. On gabapentin 2700mg pday at the minute which seems to be helping with the trigeminal neuralgia/numbness/pins and needles and burning. Kind of feel like I’ve been living half a life for the last couple of years, due to pain, fatigue etc, just getting done the essentials and too knackered for anything else!
Just wanted to say I think the forum is great, I feel like I have gained a great deal of comfort, info, and reassurance in a way from coming online, and being able to share in everyones experiences at a time when you darn’t admit to anyone what you actually fear may be wrong with you, for fear of being told you are over-reacting. My family are great, but I do feel a bit isolated with my own thoughts, so thankyou to everyone.
ps. just wanted to say a special thanks to rizzo for all the info she gives