This seems to be the place for new comers so thought i would start here. I dont know what is wrong with me yet. I went for an eye test last week as my eye sight had deteriated and the optician found i had inflammation on my fibre optic nerve, i was then told to go to my doctor immediately which i did who then told me in his words “i want to be open and honest you with i think we maybe dealing with MS” i am waiting to see a Neurologist in the next couple of days.
Im in shock and i dont know what to think. After researching MS i have decided two things, 1 i cant believe my doctor suggested MS without me having more tests and 2 the symptoms i have had over the last 3 years could make sense. I have gained 4 stone in 3 years from a size 8 - 14/16 and along with this weight gain (or so i thought) came numerous aches and pains specifically in my back and tops of my legs and knees, extreme fatigue, depression and anxiety, dizziness and toilet problems. I put everything down to me gaining weight and feeling really sh** about myself. I didnt go to the doctor about anything apart from the depression and anxiety as it started to scare me more than anything. I have also had hyperthyroidism on and off over the last 6 years it is however stable at the moment. The anxiety and depression has got worse over the last three months and so has my concentration levels, i was / am doing an OU course and cant concentrate long enough to study reading is really difficult - hence the eye test lol. So now im here not knowing whats the matter and feeling very scared. Im a single parent to a beautifull 9 year old little girl. Im feeling very alone. Sorry to be so morbid.
Any messages would be appreciated right now.
welcome to the site, its great here for support and help so any questions just fire away and someone will try and help
i dont really know whats worse, if the gp gives you an indication of what they think is going on or if they just tell you its nothing to worry about!
i do think though that the majority of gp’s do whatever they think is best for each person, wether we agree with that or not is another matter. maybe he did think about it some time previously in your history and now he thinks that its time to give you an indication.?
personally i would rather be told of there being a possibilty rather than be told there’s nothing wrong with you or similar.
having said that it does need to be a neuro who diagnoses it and they will only do that if there is enough evidence, they have to follow the “mc donald criteria”
if you google that you will see what i mean, its not just about going to the neuro and he tells you that day, it can take a long time to get formally diagnosed.
i know i had no idea what ms was about i think people straight away think about being in a wheelchair when thats far from true for a lot of people.
i have been ill for 7 years and have had diagnosis of fibromyalgia, likely ms, CFS/ME and no i have the “its all in your head” label but ive been ill for long enough to know that i am actually ill and one day i will be able to prove it.
there are drugs that help too, but its just about you giving yourself time to get your head around it and maybe it could be something else entirely, i know its been said that a lot of other problems have symptoms similar to ms, so dont be too hard on yourself.
please feel free to message me if you feel you need to.
love mandy xxx