Hi, don’t know if anyone can help. For the last couple of days I feel as though I’m trembling inside. I’m newly dx. No ms nurse. Just wondered if this is just one of those many weird feelings? My main symptoms are in my hands but more pain up my arms and across my chest. Legs are trembly. Is it just one of those things?
Hi Tonka, I’m afraid this sounds like another “normal for MS” thing, to me. Although perhaps that might be reassuring? It may be to do with the core muscles (of your trunk) getting quite weak, which is a common problem with MS. I certainly feel quite trembly if I’ve been overdoing things, or standing about at the bus stop too long. It’s a long time since I had flu’, and with a bit of luck, I won’t again, since I started having the injection. But it’s the same kind of shaky I remember getting when I was recovering from flu’. Tina
I get two types of internal tremor / trembling. One type feels just like tremor, but it’s not visible (it’s always a surprise to hold my hands out and see that they’re still). The other type is when my muscles are tired, which doesn’t take much 
Hopefully, this new trembling of yours is just one of those things, but it could be a sign of something brewing. If you start getting other things or it gets worse, maybe give your neuro’s secretary a call and ask for advice. In the absence of an MS nurse, it’s probably your best bet at getting some help (unless your GP knows about MS?).
Karen x
I get this on a regular basis. I describe it as my insides vibrating.
Mary
Hi, thanks for the replies. I hate going to the drs. so I really appreciate your replies and in a way its reassuring that other people have similar symptoms. I feel more and more exhausted and just changing the bed wipes me out. Will I get more energy, does this go in phases? This is probably an unknown but if I can ask for your experiences, Thanks Lynn
Hi Lynn
Feeling more exhausted is another one of those things with MS. There’s a couple drugs (amantadine & modifinil) which some, though not all, people find help. DIet can also make a difference (for example, white bread or too much red meat can leave me feeling lethargic), and many of us find being too hot can leave us feeling more wiped out.
But it would be worth finding ways to make things easier - things like not doing too much at once, but taking regular breaks, or doing your supermarket shopping online. Another thing we do is to cook double so we can have leftovers the next day, and sometimes cook a big chilli or curry and then freezing portions, so we can have an easy meal.
Dan
Hiya
Yes. I get this when I am tired and have overdone things Once I accepted that there wasn’t much that could be done to help the tremors they seemed to settle down a bit. Worrying about them seemed to make them worse.
Take care.
Shazzie xxx
Hiya
Yes. I get this when I am tired and have overdone things Once I accepted that there wasn’t much that could be done to help the tremors they seemed to settle down a bit. Worrying about them seemed to make them worse.
Take care.
Shazzie xxx
Hi, yeah I get it too… like Shazzie, when I’m tired. I thought it was my heart at first as it’s like fluttering inside… but worked out it was an internal tremor.
Take it as a warning sign that you need to take things a bit easier. Maybe try, if at all poss, to get some rest this weekend.
Fatigue is such a difficult symptom. I’m lucky as not working and live on my own… and in my experience fighting it only makes it worse.
As Dan says, try and do things in stages. For instance, changing bed… do it in bits. Doesn’t matter if it takes all day to get it finished.
With fatigue you need to lower your standards. Only do what’s necessary. Don’t worry about it all being perfect. The housework police will not arrest you… promise!
Pat x
Bump.
This was really frightening for me when it started happening so thought I would bump you back to the top. This post would have been really reassuring for me when it started for me in 2005.
Take care.
Shazzie xxx