Hi, so glad I found this site. Feel like I’m always in burdening far too much info on everyone, and no one can help or really understand. Ii was diagnosed officially about a month ago and I don’t thinks I’ve properly accepted it. I used to be on amitryptyline, until a chemist realised I shouldn’t take it with citalopram! Tried baclofen, awful, now trying to sort dosage of gabapentin. When I need paracetamol and ibuprofen to get through the day and night, I up the dose! Can’t remember what it feels like to not hurt, ache and feel prickly all the time. Left arms always tingly numb but it’s more throbbing these past weeks, left leg tingly and right calfs started to feel like it’s about to cramp constantly. Neck muscles always about to crick and lower (mainly left) back/ hip is constantly hurting and pulling. Also getting horrible headaches although these have dipped off( thank goodness). Is this a relapse or is this how it is and I just have to suck it up?!Had an MRI in June which showed extra areas of inflammation and that it was active, but just feel like things have been adding up since then. Sometimes I question whether it’s me making myself walk and move slowly ( carefully) like its a learnt thing, because if I go my usual speed, something will go wrong, should I just force myself to speed up?, but will I then fatigue myself? Can’t get my head around this at all!
Thankyou for being here and letting me share my muddled thoughts.