Hi I’m hoping someone can help. For the last couple weeks I’ve been waking in the night freezing cold bottom half mainly. Last night I woke I was really hot but when I turned I suddenly felt really cold and started shivering. Today I’ve been experiencing cold sensations in my arms so I thought a warm bath would help (not hot because that sets my symptoms off). As soon as I got in I felt a cold sensation under my legs to the point that I had to get out and was freezing. Is this something ms related? It’s a new symptom for me so I’m a bit worried. Caveat to add I have been tired and stressed with family life 
Hiya,
I’m sensitive to the cold and the heat, and when my neuralgia is bad hot water feels cold. My hands and feet are permanently cold, and I tend to sleep in thermal socks and leggings which really helps.
Do you think you’re going through a relapse?
Thanks for the reply it sounds very similar to me. I relapsed in November so thought it might be too soon. Everything is hurting more, taking more effort and I feel odd if that makes sense? It could just be that I’m run down with poorly kids and partner, so I’m doing more than I normally would
Hiya,
Oh bless you, are you getting enough rest? It’s worth mentioning to your MS team.
Tbh I was only diagnosed in December 2023 when I had a big relapse, then went on to have a further 3 relapses I asked to be referred to an MS specialist and in a matter of weeks I started a DMT in October . Do you take a DMT? If you do and it is a relapse then maybe you need to be on one with a higher efficacy.
I hope your MS team can help and you get some relief very soon, as it impacts so much on your quality of life. x
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Wow that must of been awful and terrifying for you I’m glad you have started treatment though! I’m due to start soon got an appointment next week to go over my options. The MS nurse is calling tomorrow so hopefully we can get to the bottom of what’s going on
It’s been life changing, but I’m trying to remain positive, thank you. I’ve had blood test results back from my review and they’re happy with the result. I’ve learnt to pace myself to deal with daily fatigue. Apparently once I’ve been on kesimpta a while longer it’s meant to help with fatigue.
I hope you get on well with your appointment with your MS team, and your choice of DMT have a look at MS selfie info cards on the DMT.x
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It certainly sounds familiar to me. You post has taken my back to my first symptom, when I got in the shower the morning after it all started and the hot water felt cold on my weirdly numb lower half. I had no idea what was the matter.
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It’s not nice , and it’s worse for me in the winter as it happens frequently.
Does it still happen to you Alison?
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No, it doesn’t. That feature of what turned out to be my first relapse did resolve completely, although other aspects didn’t.
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It’s interesting because MS is such a broad range of symptoms but we all seem to end up meeting in the same place eventually!
Went to bed with a dead arm (although useable) last night and woke up with it this morning I think my body is on the wonk for sure!
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It totally threw me it was the oddest thing to be in a warm bath but feeling cold to my bones 
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Bless you, hope these symptoms soon resolve or at least improve for you.
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Yes, I thought it was funny at the time because it was so bizarre. When the penny dropped a couple of days later about what might be amiss here, I stopped laughing. 
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