I’m feeling so low because nobody can help me. My blood tests are all normal and nothing was picked up on my head and spine MRI scan. My symptoms are:
- constant left leg buzzing / vibration. All the time!
- Pin prick sensations anywhere across the body. Lips, legs, arms, cheek, torso.
- Both feet and legs feel freezing cold but not to the touch
- Feeling of having a hair on my legs that isn’t there.
- Muscle twitching, mainly in calves and thighs but can happen anywhere.
This started in April and has been on and off for varying degrees until now. I’m feeling so down and depressed. I am sure these are MS signs but my MRI and EMG was normal and neurologist does not seem to think my symptoms match up completely.
A quick question but have you asked your GP and Neurologist what they think might be causing the symptoms?
Hello. The GP has absolutely no idea. The neurologist is also unsure. First of all said maybe hormones, than maybe migraines but then thought against this. Still under a ‘watch and wait’ with my neurologist 
I think the risk for you at the moment is putting your life on hold until you find out what the matter is. Maybe you will find out and maybe you won’t, but it doesn’t sound if you’re likely to get a definite answer any time soon.
If I were you, I would be trying to throw myself into life and get on with things and just pay as little attention as possible to those underlying health worries. Those worries are going to be there; the only choice you have is how much attention you choose to give them. Try to give them as little as you can manage.
If something dramatic happens, that’s another matter, of course. But you’ll deal with that if/when it comes along. In the meantime, good luck with it all.
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Yes, you are right. I needed this today. Thank you
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From what I understand, that’s the problem with MS : initially it’s very hard to diagnose MS unless e.g MRIs show lesions. My guess is that it’s good that your MRI didn’t reveal any lesions. My first one revealed ‘quite a few’ lesions. This was after an episode of Optic Neuritis.
Anyway Mash, and as @alison100 says, no need to put your life on hold. Who knows what is causing your symptoms but I say this to all people who are worried that they have MS or who are newly diagnosed: every case is different but I was diagnosed about 18 years ago and although I can’t walk for more than 10mins or so without some sort of aid/support I’m still mobile and enjoying life. Yesterday I was out working in the garden for 90 mins or so, and we (my wife and I) are not long back from a week on a Scottish island watching golden eagles and the red deer Rut ( not everyone’s cup of tea but it ‘rocks our boat’).
Hi @mash3032 ,
I feel for you, I myself am having all the symptoms you describe and am in that limboland that we all are so fed up with!
Mine started with optic neuritis 3 months ago and from which I have not regained the sight in my right eye. My MRI showed multiple lesions but only one had MS characteristics. I have had a lumbar puncture but don’t have any results yet.
I have seen on my hospital app some results from it and they are all normal so far so Im thinking its probably not MS!
It is the hardest thing when someone says ‘just be glad its not MS and get on with life’ whenever you’re feeling rubbish, have probably had weeks/months off sick from work and for some reason feel like a fraud that MS has even been mentioned!!
Trust me…you’re not alone!
L x
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