today i peed myself .i was sat down just after i had my lunch felt like i needed to go for a pee ,not urgent though.started to go up the stairs got just about to the top when it happened.i was wet through,its never happened to me before.sometimes i have trouble peeing sometimes i am in an urgent rush and only just get there in time.but this time there was no urgencey it just happened.now i,m worried it will happen again.what happens if i,m out somewhere and i pee myself again.now i,m panicing about going places .i will have to limit my fluid intake when i know i,m going somewhere but in this heat i,m drinking plenty of water.anyone else have this problem colud do with some advice please
Aww hun must have been a shock. I keep having dribbles but not fully peed myself. Try not to limit your fluid intake as you are setting yourself up for utiās and kidney problems. I donāt really know what to suggest x
This happened to me a few years ago. I wasnāt relapsing at the time but I did have a few niggly things going onā¦none that included bladder control though. I had just come out of a shop with my mum and as we went back to the car I suddenly noticed that my jeans changed colour! It took me a few moment to realise that I was actually wetting myself and couldnāt stop it at all! No warning, no feeling like I needed to go.
Luckily it only happened once, I have no clue why it happened though. I rang my MS nurse and she asked me to get my urine dipped at the GP and lots of other questions about how my water works were. The dip test showed nothing and Iād had no other issues. She just said that it must have been a little blip and not to worry, just let them know if it happened again.
It has never happened again, like that. Iāve had urgency to go and got there just in time, but not just wet myself with no warningā¦luckily.
I know how embarrassing it can be, when we can`t control our bladders (or bowels).
I had both retention and urgency, which resulted in many accidents.
I have NHS pads delivered. They are big, but you can buy others which are less bulky. They also come in many sizes, with tear drop markers to indicate how much they absorb, depending on how severe your leaks are.
There are also meds like oxybutynin and vesicare, which help calm the bladder.
Maybe it would help to speak to someone from the continence service. I believe you can self refer to this or ask your GP to refer you.
Please dont be embarrassed about this issue, as it is very common amongst forum members.
And never restrict water intake, as this could have a bad effect on your bladder and kidneys.
Its no fun when you get accidents, another horrible part of MS. I get tena pads delivered on the NHS, yes as Poll says, they are quite big, so I mostly use them at night and I bought very discreet ones, Sainsburyās own make and very reasonable priced, for when Iām out and about, at work etcā¦ it like a wee security blanket for me as I have no confidence in my bladder Take care Jools X
This happened to me once in debenhams! Was before I was diagnosed about two years ago, touch wood never happened since, but I do make sure I use the toilet before I go anywhere and again when I get there.
Itās horrible the worry of wetting yourself is just another ājoyā of ms!
You might want to drop a sample of urine off at your doctorās to check you havenāt got a bladder infection. I have wet myself several times over the last few days - didnāt have any other symptoms. I thought it could be the hot weather making my usual urgency worse. But I dropped a sample off just in case and just heard from my doctor that he is prescribing me a short course of antibiotics because they found something in the sample. Quite a reliefā¦
I had similar experiences, and a quick visit to the doctor got me an unexpected prescription for āVesicareā - which has made a massive difference!Ā± urgency is no longer there, it feels like my old bladder
i have had accidents but it seems to be under control.
this hot weather has caused me to have minor accidents though.iām on a maintenence dose of trimethoprim, have kentera patches (because i told the nurse that iām rubbish at remembering to take tablets.i also self catheterise so iām fairly confident but wary of how sneaky this disease can be.
you really should see a continence nurse or bladder and bowel nurse (change of name)
Iāve had problems with my bladder for a while. Sometimes I canāt ālet goā then my bladder fills and I get urgency with very little time to get to a loo with accidents. My GP spoke to Neuro who got me referred to urologist. Was sent for urodynamics and the nurse there referred me for self catheterization without even waiting for urologist to get the results. Got appointment for 3 weeks after, still havenāt seen uro. Canāt stay home every time I struggle, will definitely improve confidence and quality of life. Hope you get sorted.
I have dribbles nearly everyday. I also find that when I get to the toilet and actually it, ive got to be really fast to get my pants down. Its like some sort of signal in my brain associates seeing the toilet with weeing. Its my nightmare going toing to a public toilet and there being a big queue. Thinking off sending off for a radar key. xx
May be something in the water as I had a fright at work today. Thank God for hand dryers in the loo. Managed to dry my shorts and net pants in 10 minutes of continuous blast, without anybody being wiser. Spent the rest of the day avoiding people, concerned an odour might linger, especially as it was so bloody hot today. Eventhough the pads are big enough to surf on, they dont cope with a sudden burst when I am sitting down.
One night I was sound asleep and I woke up because I felt warmness just running down my legs and I realized I had just peed myself and I couldnāt control it it just kept coming. Then a few nights later I was pumping gas and all of a sudden I just started peeing and had no control over it, luckily it was late and no one was around but it was still humiliating. It was just a little leakage, it was like a normal amount of pee as if I was using the restroom and I couldnāt stop it. It hasnāt happened since but I was just wondering if anyone knew what could have caused that and how to make sure it never happens again.
Ask for a referral to the bladder clinic. Pads are okay, but they are rather ādryingā I found. There are medications. some good, some with side effects.
Causes? can be many. Solving it? Ditto - so seek medical advice, donāt be embarressed, its part of MS. I went to the ābladder seminarā at the last MS Life - there were ppl there of ALL ages, both sexes. Suddenly you see - its not just me!!
I wear pads as I leak quite regularly. I very rarely go the full Monty but it has happened a few times so I wear larger pads during the day, with a mini pad inside. If I have a minor leak, the mini pad contains it and can be discarded in seconds and replaced by a fresh mini.
for the āalmost made itā situations, I used to count down which helped calms this somewhat. I used to deliberately Time the count down, so .i would be between 10 and 5, when I was completely ready to go. Somehow this seemed to fool my bladder and reduced the āalmost made itā leaks quite significantly.
Derek, I think the count down sounds really interesting and Iām glad it worked for you. Could you tell me a bit more about it please? Do you start counting down when you first feel the urge and it helps you to control it until such a time as you get to a toilet? I donāt have a huge problem with this issue, but It is becoming more and more of an issue for me.
I went to the continence clinic two years ago, they spent 1.5 hours going over my past pee-life, lifestyle, exercise etc. After testing my urine for the second time. They gave me hints and tips that have made me more confident although I am aware all the time that I must go to the loo more even if I donāt want to, so the bladder does not get full. I do exercises, bends, eat and drink smaller, sit in the chair doing pelvic tightness and relax, lots of little things that I would have never known about if the nurse hadnāt educated me. I still have a very large bowl in the car (just in case I get stuck). Fortunately I have never had to use it yet but if you see a silver car in a motorway queue with a dark haired lady tossing a bowl of liquid into the middle lane, you know who it is!
Oh I forgot the funny part, when I went to the āpee clinicā, she asked me to fill in a peeing form. It was two pages long. I said how long is this for, a week she replied. I didnāt stop laughing for ages (and then nearly peed myself) as I informed her I would need a lot more pages to cover even a day never mind a week.
Take care Jools X