Happy Christmas everyone. Question… For last couple if days been sleeping really badly. Hot feet and twitching arm. Had a cracking headache in right side of base of skull and goes with painkillers but feels v numb when touch. My right hand side including my hand is feeling weak. Can’t decide whether relapse or just bit of bug and lack of sleep. Great timing hey ho. There are so many bugs going round and I have been so good taking huge dose if vit d3, omega 3,6,9. Amatriptalin (can’t spell). And have managed to keep off colds bugs etc. Typical it’s Xmas tomorrow, I have some antibiotics stashed for rainy day, should I take them, got some steroids stashed, again should I take them, or is this just stress of Xmas No point ringing GP. No point going to a&e. Ms nurse not answering. Typical. Has anyone has numbness in skull. Sounds weird but nothing is simple with ms. I take Rebif and seems to be keeping it a bay but this might be first relapse since taking Rebif. Hoping just run down. Sorry to be so boring but you guys with ms are much more informed than most neuros and ms nurses… Xxxx
hiya
you are not boring!
i understand the numb head thing. about 3/4 of my head was what i describe as frozen. i couldnt eat swallow even drink-it just dribbled back out. fortunately its rare but just wanted to reassure you that my frozen head has defrosted and is 90% ok now
this ms malarkey never ceases to surprise me! i can’t say re antibiotics/steroids…
u r right re a/e-avoid if at all possible!
keep cosy and take care-try not to worry cos that doesnt help anyone.
merry christmas to you!
ellie x
Thank you so much, it’s driving me nuts this ms. Been feeling great and now just as loads booked in feeling rubbish xxx. How long did you head feel numb for. Hope it doesn’t last too long xxx
hiya again
mine was 6 weeks at height of it but we are all unique-hope urs sorts itself out quickly
ellie x
ps
i have never had headaches (prob how i ended up with 4 kids lol) but if paracet has helped u i would guess its not nerve/ms pain u are experiencing but hopefully a ‘normal’ headache and it will go soon…
however as i said, no 2 of us are the same-hope the headache goes soon, ellie x
I have a numb patch on the back of my skull. Not always noticeable so tend to think it’s miswired demyelination (short circuit style if that makes any sense). Been present on and off for about 6 months now. Hope yours clears up soon. Merry Christmas! Ann xx
Managed to get doctors app and thinks I have an infection and some muscle spasm that giving me this numbness prob from bad posture due to ms. Thus getting bad muscle spasm in neck. Truly fed up with this ms malarkey gets to you once in a while. Think bit low and bit weepy cos don’t feel well…no booze for me tomorrow defo having a lie in as need to rest Thank you All for being so understanding. I am not in a grea place tonight. Lets hope i wake up feeling like a new woman xxx Merry Christmas have fun xx
Hi, I’ve had a facial spasm to the left side of my mouth which comes and goes since last Friday. I’m trying to work out if its now turning into numbness rather than spasm. About 10 days ago I had a vibrating sensation in my left ear for a few days and visited the GP, was told it could be fluid in ear which is sign of an ear infection. May be its all related. I was diagnosed with RRMS last month and have contacted the MS nurse to see if I can go to a talk on DMT’s as i’ve been offered them. I was thinking of holding out and seeing if the new oral tablet DMT’s get the go ahead for NHS prescription in April or go on Rebif sooner. Lots of bed rest I guess and vit tablets. xx