Hi, ive been in pain in the day at night with hip pain and shooting pain it keeps me awake at night i feel my ms is worsening and it feels scary to knowing whats next, i have another mri scan next week and ive spoken about stronger medication has im currently injecting brabio. I hope everybody is doing okay
I’ve been to more specialists, had more bloodwork done, EMGs, MRIs, Biopsies, tests, surgeries, & more tests… And they still haven’t agreed on what it is that is causing corset around my ribs, low back & hip pain, extreme fatigue, numbness, tingling, constipation, bladder problems, headaches, itching, nausea, vomiting, etc. For over 15 yes I’ve seen every doctor Speciality you can imagine. Diagnosed with- rhamdomyolosis, aseptic osteonecrosis, lumbar 3-4 fused, L knee replacement, L hip & R hip replacement. R elbow joint needs to be repaired. My bones are necrotic at the meeting into a joint at all major joints is: hip, elbow, knee, ankle, neck, shoulders.They have thrown stiff man’s syndrome at me, hypothyroidism, Guillaume Barre Syndrome, ALL, ALS, leukemia, cancer, phenochromocytoma… Somebody please figure it out!! I’m so tired of doctors appointments and tests years of my life are wasting away!!