Hi Just wondered if anyone could advice me pls I’m under a neuro after experiencing many different symptoms I’m Undiagnosed but I woke up yesterday and with what feels like severe cramp in both of my legs i can hobble around but the pain is unbearable they feel like there burning and tingly and seems to be going into my feet now Not sure what to do if anything My gp is hopeless and really has very little time for me at all I’m a little scared as really am struggling with walking but don’t want to be a drama queen Xx
Hello Cody, I`ve been where you are now and know only too well how frightening it all can be.
The leg pains sounds like neuropathic pain and ordinary painkillers dont help. Have you got access to an MS nurse at all?. You dont have to be diagnosed to have that available to you…I didnt. If you do, then contact her to ask for advice.
In the beginning of my probems, I had excrutiating pain in my thighs and bum cheeks…it felt like sitting on broken glass. It drove me up the wall.
I went to my GPs about it and saw a locum. he was a retired GP and had time to listen, with such a patient manner. I said the following;
Ok, I may have MS and there is no cure but do I have to be in SO much pain? I was prescribed amitriptyline. I began on 20mg a ay, but got to 100mg before it zapped the pain. A while later it was reduced to 75mg and I`v been on that for about 15 years and it is marvelous!
Youre not being a drama queen when youre in severe pain and having mobiity probems. Is there another GP at your surgery, who you could see?
When is your next neuro appointment. Have you had an MRI yet?
We can talk more if you`d like to.
luv Pollx
Ohhh thank u so much for your reply I saw the neuro last week for the first time and waiting for an appointment for MRI of my head There is no other gp at my surgery and he really doesn’t like me at all as I complained about him to the practise manager it was her who got him to refer me to the neuro I have no information of an ms nurse And feel scared my symptoms have been on constant for about 8 weeks but felt as thow they were going Friday/Saturday only to wake up with this yesterday which I haven’t experienced before I’m scared as I’m a single mum of 3 and walking is really difficult Sorry if I seem to be moaning just not sure where to turn Xx
Hi Cody
Being in such pain and struggling to walk is good reason to be anxious so you’re not being a drama queen at all. I seem to remember that you have seen a neuro and are waiting for an MRI - is that right? Maybe you could let someone know that this has happened and see if it can get you moved further up the list for the scan? It might not make a difference but at least you would feel like you’d done something about it. As your GP is so useless, could you contact the neuro’s secretary and get a message to the neuro about this? Might be worth a try?
good luck
Lilacgirl x
Thanks again I’ve just called the neuros secretary who was lovely and told me that my MRI is due 25 march I’ve just explained the situation with my legs and she advised me to get in touch with my Gp if no luck there to call her back and she will spk with the neuro on my behalf Although she was very understanding I still feel a little stuck what happens if they continue to get worse as it’s def going more into my feet which it wasn’t yesterday Thanks for listening xx
Hi - think my last post crossed with your reply to Poll so sorry if it didn’t seem to follow!
At least the neuro sec is understanding. If I were you, I would see if your GP can see you (the answer is not soon, I guess) and then phone the neuro sec back and say you would like her to speak to the neuro, as she has offered to do that. At least 25th is only a couple of weeks away now (although I can’t talk as I’m not doing well with waiting myself).
Anyway, it seems that you need some other support more quickly, whatever the outcome. Do you have any family nearby that can help out with the kids at all? Or any good friends? Do ask for help if you need it, even if it feels embarrassing. How old are your children - are you still at the stage of doing nursery or school runs and having to help them with dressing/ teeth etc? It must be really hard dealing with them when you’re feeling like you are so just focus on what’s really important and tell yourself that it’s OK to leave the rest.
Take care
Lilacgirl x
Your reply was so lovely thanks so much and your not going to believe it but about 10 minutes after I called the MRI department to put myself on the cancellation list they called me back and asked me to go down at 5 tonight 
so my scan is all done now just have to await the results If hadn’t been for your advice I wouldn’t have done it so thank you so much xx My children are 9,12 and 16 (typical teenage boy ) I do have some really good friends but I’m not the sort to ask for help but think it may be time I started to swallow my pride a bit I’ve been off work for 7 weeks now and think I’m stressing about that too which doesn’t help as just getting myself worked up but would just really like to tell you how grateful I am for your advice today xx
Hi Cody - so glad you got that cancellation to move things on !
I’m sorry to hear your GP is so unhelpful - is there someone who could come with you to your next appointment & support you? He might behave better with a witness to the proceedings…Just a thought.
Take care - try not to stress; it does tend to aggravate symptoms & wear you out!
xx
Hi Cody
That’s so good to hear and I’m really pleased you got seen straight away. I’ve been helped so much by messages on this forum so it’s good to know I’ve helped someone back. Now it’s just the wait for the results (I’m in the same position). Keep posting on here and let us know how things go. Oh, and do try asking for help from friends when you need it. I’ve got a 12 year old, too so I also know that having kids that are a bit older doesn’t necessarily make it any easier!!
Take care
Lilacgirl xx
Hi just curious as to how long people have waited for MRI results ?
Hi Cody, I just wanted to say - you don’t have to stay with this GP you know. You have every right to move doctors/surgeries. If it seems that you may have MS or some other neuro disorder, then the support of your GP may turn out to be invaluable. Perhaps you should consider moving to another practice once the results come back (whatever they say) Leah
Yeah that’s my plan whatever the outcome I’m moving as he has treated me terrible and feel sick at the thought of having to visit him 
he makes me feel worse when Ive seen him xx Thanks
Hi Cody,
Great to hear the progress you are finally making - by pushing for more help. I agree with Leah, that you have every right to change Gps or even surgeries. I changed mine twice before I was happy with the treatment.
Its just unfortunate you have a useless one. I just had an appointment with my Gastro specialist, who did not listen to a word I said. Eg, I explained my problems with a super healthy diet as I am allergic to almost all fruit and most of the veg. I gave him a run down of small portions of food I ate on a daily basis, and the feedback letter he wrote back to my GP read " … she claims to eat nothing at all. …" I was livid. There goes another arrogant lazy Dr. Even my Gp was disappointed in him. Its important to stand your ground. The best person to understand your body is yourself.
On a lighter note, I noticed you still dont have medication for your troubling pains in your legs and feet. Maybe you could try asking your friend or family to give you a good massage. I have similar symptoms where my legs ache horribly , particularly in the afternoon and my feet feel like Im walking on small sharp toys that have been left on the floor. I would say that the legs and feet tend to be the most disabling, well definately for me anyway. So I can understand your frustration. My partner comes to the rescue on a daily basis, to massage out the knots and loosen my stiff muscles etc. It really helps. Also if you can tolerate the heat, try a warm Radox bath, or soak your feet. I swear by the massages though.
Good luck with the Neuro results. Let us know how it goes.
Almond xxx