Hi All,
My name is Mandy and i am going through the process of diagnosis for MS, think I am at the final hurdle to get a proper diagnosis now. My question is, as of Thursday i am having a big issue with numbness and pins and needles, It’s affecting half of my right hand and my entire right leg and pelvis. Everything feels like it’s asleep and is very uncomfortable. I spoke to my consultant today and he said at this point there is nothing to do but wait for it to pass. Does anyone know of anything i can do to ease the symptoms? It’s very uncomfortable and upsetting, especially as its affecting my pelvis so essentially i can’t feel my genitals much. 
Any advice would be gratefully recieved.
Thanks
hi mandy
i take an amitriptyline every day at about 9 pm.
it damps down the tingling and buzzing.
they make you drowsy hence need to be taken later.
your gp should be able to prescribe this as it isn’t specifically for ms.
carole x
Yes it’s have amytripline too and I had it years before I was diagnosed . Doesn’t get rid of it all but it “turns down” the sensory symptoms
Thank you both. I’ve spoken to my GPs secretary and asked if I can get a perception. All I want is a bit of relief, even if it’s not total. The pain in my foot and hand is pretty intense, at times it feels like its burning, others like I’m being stabbed and others like I have a nasty graze that is being poked. My neurologist is nice but his response of “just wait and see, it should get better in 4-6 weeks” made me sob. So thanks again for the advice.
Hi Mandy, I know limboland is a horrible place to be hun.
I hope you can get some relief with amitriptyline. It is a very good painkiller. Plus if it helps with sleep, that’s a bonus.
Pollsx
Hi feeling quite anxious and concerned. Ive had severe osteo arthritis for over 20 years now Im 56 years old. My problems are related to playing professional football and Rugby League. Recently Ive been treated for spinal stenosis Lumbar and cervical and was referred for a second opinion to a spinal professor. He felt some of the symptoms I had were not consistant with spinal Mylopathy and sent me for a spinal and brain scan.
The results of this were that 2 white leasions were found on both sides of my frontal lobes. For years now I have been suffering from numbness in both hands with pins and needles and also down my right leg and extremeties. I had carpal tunnel surgery which didnt help at all. My memory is awful but only short term and I m finding it very hard to concentrate for any period of time. If I watch tv and it can be something I am really enthusiastic to see, I fall asleep within 10 minutes waking up and then falling back asleep again.
I am in pain with muscular scelatal problems which dont just effect my bones but feel like someone is putting shap needles in my back muscle. These can be for weeks on end and then get better for a short time but always return.
The consultant has refered me to a neurologist and said he feels it may well be MS but I would need several tests to get a proper diagnosis. I feel as if Ive completeley run out of fuel at times and have no energy left. I am quite anxious right now and my family dont really want to discuss it. In Limbo I guess until the tests.
Roy x
hi roy
that must have been a shock to you.
quite a few famous sport people have ms.
one man utd player whose name i know but is refusing to be retrieved.
that feeling of running out of fuel is the dreaded fatigue.
try not to get stressed because that only makes it all worse.
if you do get an ms diagnosis you should be able to start a Disease Modifying Drug (DMD).
this at least helps you feel able to fight back.
then again it could be something as simple as a vitamin deficiency.
B12 is one and you can get injections which help with the fatigue.
carole x
Just wanted to say thanks again for the advice. I went back to my neurologist and my GP and now have a course of steroids to start tomorrow and if I’m still in pain after that I have Amitriptyline. Fingers crossed I get some relief.
Good luck Mandy , it’s not always the easiest journey, mine was over 19 yrs…and all out stories are different but there is usually something that can help
Hi Mandy, I’m in the same boot as you, it’s such a struggle, some days I just don’t know how I manage to get on with life, but we have to, don’t we! I’ve had pins and needles in my left foot for a whole year, well it will be in 9 days time! I take Pregabalin which has helped with most of my symptoms, but not the pins and needles, I couldn’t cope with Amitripyline, it made me a zombie! I hope things improve for you. Sarah xx
Hi. a I’ve had left sided numbness since March 30th last year. I actually thought I was having a stroke. I get pins and needles and blurred vision. And I can’t walk up hills or very far without being in terrible pain. I have just received what I think is my last neuro letter diagnosing Migraine Aura, and spondylosis. I already have a diagnose of fibromyalgia. I only know what spondylosis is, from googling I’ve had no explanation of what it is from doc. I’m sure the neuro knows what he’s doing but migraine aura doesn’t make sense, as aura only lasts up to 60 minutes, a few times a year. I have it every day for 24 hours. White matter was found on my frontal lobe, but he has said this is irrelevant to my symptoms and is something I’ve probably had for years. I hope you get answers soon. I was hoping for answers, but I think I just have to accept I’m going to be like this for the rest of my life.