Help with possible diagnosis.

Hi, I’m going to a neurologist at the end of this month to talk about MS symptoms, which I have more than 50% of the early signs. I’m 38 years old and a mom of a 2 year old. I’ve had symptoms for about 10 years but have gotten worse after I had my daughter. I also have endometriosis and have been reading about correlations with endometriosis and nerve diseases. My grandmother also had endo and had neuropathy in her feet the last 10 years of her life. My questions is, are there any other females out there who have endometriosis and MS? Any help is appreciated!

Thank you!

I’ve never heard of a link between endometriosis and MS. That said if you google you can find a claimed correlation between just about everything and MS! Neuropathy in feet also has loads of different causes so that doesn’t narrow things down much.
I really hope you get some answers with your appointment. I’d take a list of questions with you because it’s so easy to forget. If the neurologist thinks you might have MS, s/he will probably refer you for other scans/tests. It can be a bit frustrating to be kept in limbo and it’s worth asking how long it will take. Unfortunately MS can’t just be diagnosed straight off, it takes quite a bit of information to piece it together.
It must be a struggle to keep going with a 2-year old and symptoms. Hope you have support around you.

Hi Leonora!

Thank you for your response! I wouldn’t even know what questions to ask. Do you have any ideas? I am bringing. Along list of symptoms as to not forget anything but I don’t even know where to start.
Thank you again for your kind words and support. It’s greatly appreciated!


Well keeping a kind of symptom diary is a good idea.
The neurologist should take a history of your symptoms and might examine you (eg test your reflexes). They may also refer you for a scan/tests, in which case it’s worth asking how long that takes and when - and how - you might get the results. If they refer you for an MRI brain, I’d ask if they are also going to scan your spinal cord at the same time.
I’d also tell them explicitly that you have wondered about MS and ask what possibilities there are. They can only diagnose MS when they have seen scan results and ruled out lots of other things. Often it takes more than one scan.
Basically I think you’re unlikely to get MS ruled in/out on your first visit to the neurologist. But since you’re bound to be anxious, knowing what to expect in terms of next steps might help you get on with your life in the meantime.