I meet many MS victims at the centre I use plus other people with issues such as heart problems, cystic fibrosis and autism. I looked up the locations of all the MS centres and noticed that some people with MS are too far away from them. I then decided to try raising some cash for a new centre. Most of those already in existence had been funded by donations and other fund-raising activities so I am going to have a go at it.
Well done. I have had a vague feeling for years that I might like to try HBOT. So where will your new centre be? And what benefits do you get from it?
Sue
Most of the people with MS are probably unaware that HBOT exists. In any event, there are only around sixty locations in the UK where the chambers are sited and i think most MS victims reside far away from them.
There is one HBOT centre in Scotland using a mini-bus to collect their members and then return them home again. Such a service would help to avoid appointments for treatment being missed.
MS victims seem to be singled-out by the NHS who will not provide HBOT. The NHS do not want to know how HBOT benefits MS victims.
There are lots of locations in the UK where I would site an HBOT chamber.
Have you read āOxygen and the Brain: The Journey of Our Lifetimeā by Emeritus Professor of Medicine Philip James, by any chance? I havenāt, but thought it might be right up your street.
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You may be unaware that people with MS generally have a problem with being labelled āvictimsā. We would rather not have such a negative term applied to us. So you may feel that a reaction against your terminology is hostile but actually itās pretty normal. If you describe us as people with MS (PWMS) or another such term that is not loaded with negativity then youāll get a more positive response.
Sue
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The use of HBOT for the treatment of MS is virtually banned by the NHS Commissioning Board who do not appear to make any effort to learn what the benefits are.If HBOT were to be recommended by a GP or neurologist then a complicated application would have to be made for NHS approval and funding. However, it seems to me that applications for approval and funding for a multitude of other drugs can be made by the NHS as and when it suits them. A lot of the people with MS simply do have have the spare money to travel to HBOT centres or pay for the treatment.
Hi
some specialists at our NHS actually send patients for HBOT for numerous conditions.
the message is slowly getting through.
neil
Careful use of the wild card aka the emetic professor is interesting and I await further developmentsā¦Iāll be at work teaching young musicians how to sing and/ or pass grade 1. No victims here, except for my poor knees, chewed up by bad tracking. Thanks MS.rock on.
There are several centres in scotland two of them within 20 miles from me at least 1 in every heavily populated area
There are several centres in scotland two of them within 20 miles from me at least 1 in every heavily populated area
Would people not be able to travel to these centres using NSL, or a local car service and then claim the travel expenses back?
I prefer to say that I live with MS - it implies that there IS life after a diagnosis of MS!
I also say I am a person with MS.
I am not a victim! I donāt want to be a victim of anything and I can choose not to be a victim of MS. So Iāve decided Iām not. So there! Yup, a teeny bit of petulance coming out there. But you can guess the depth of my feeling. I am also not ābraveā or ācourageousā or ābattlingā. I am just me, a normal person doing normal stuff at the same time as having MS.
As Sssue says, I prefer terms that are not loaded with negativity!
But, I donāt forget that everyone can describe themselves in any way they want!
Hi. I looked up the site which gives the locations of the MS therapy Centres and there are about 12 in Scotland. About three in Wales. Another two or three in N Ireland and about three in the Republic. If I read it right there is even one in Gibraltar! All the rest are in England.
I think perhaps āsufferersā is better word than victim?
Regards
Erasmus
HBOT is going big-time in the USA for wound injuries. Someone sent me a file on HBOT being used for fibromyalgia in Israel.
Regards
Erasmus
Yep I agree. We are sufferers not victims. I have had it a long time.
Regards
Erasmus
Perhps the best thing is to get in touch with one of the MS Therapy Centres and ask them what HBOT can do for you. In the bok Oxygen and the brain: The Journey of Our Lifetime, the author gives the 30-year history of the therapy centres providng HBOT.
Regards
Erasmus
I am lucky in that i live just over a mile from my nearest MS therapy centre, it moved to a new location due to a fire,i keep meaning to ring and go have a look round.