This book’s been around for a while now. I bought it and read it and passed it on to someone else about 8 years ago.
I also read ‘Curing the incurable’ which doesn’t seem to exist now and that helped me a lot, however it was old when I was diagnosed and the woman who wrote the book may not have had MS in the first place. Personally, I found diet to help enormously. It has really helped - but again, there are many, many diets, with quite different approaches. The low-fat diet did nothing for me - but again, that’s just me. It keeps me ticking along, but beta-interferon has stopped me from being constantly and acutely ill.
I could also write about overcoming MS, but it would only apply to me.
I see that the Jelinek campaign has now grown and that worries me a little. I enjoy discussion, reading peoples’ stories about how the got better and it’s humbling to read accounts of those who don’t have a great prognosis, but a charity that has paid administrators should do something concrete to help people. The MSS does, but what does (sorry can’t remember the charity’s name) do, except promote Professor Jelinek’s advice - sound advice, that it is.
There are so many movements/groups that claim to support people with MS - from LDN to CCSVI, to Jelinek to EL (here) and it gets complicated.
A general neurologist, who deals with Parkinsons, strokes, MS, epilepsy and other brain disorders isn’t going to produce the book and advise a newly diagnosed MSer to ‘read this!’. He/she won’t know. They aren’t trained to do this. I get quite irritated when people write that their neuro ‘should know’ about LDN, CCSVI, diet, massage, HBOT, Vitamin D3, B12, exercise, physiotherapy, weight training, fatigue management, when their next patient could have a diagnosis of Motor Neurone Disease and the poor neuro has to break the news to them.
You wrote; “It is far to easy for us to rely on doctors advise and pills they give, yet they don’t really understand our bodies like an MS person does.”
Hmm. I’d be dead without the various pills. Don’t ever advise people to stop taking medication. It’s very dangerous. As MS affects the brain, we can’t feel it. A doctor can sedate you and perform open-brain surgery and you wouldn’t feel a thing.
I owe my understanding of how MS affects my body to my various physios and chiropractors over the years. Knowing how to relieve muscle spasms is very important. Having someone check your gait, because you can’t see yourself walking, is also really important. The brain doesn’t receive pain messages properly with MS. So people with MS get injured more easily.
It’s dead complicated, MS. I don’t think we are the masters of our own body with this damn disease. That’s the cruel truth.