Today visited neurology where ms nurse was off sick so I saw a lovely neuro physio who went through my notes and discussed issues Id been experiencing.
For a very long time Ive been suffering GERD. Since suffering ms, had swollowing problems and slowing motility of foodstuffs, making me often sick. Ive also experiences a slowing of the bowels etc. Ive always said since diagnosis that ms has made matters worse, been assessed via gastroentologist who referred me back stating: a slowing of bolus, some swollowing mechanism slowing and hernia, with associated GERD. Stomach spasms probably due to ms! Ive also often experienced spasms in and around the gastric system making me throw up when it all slows down. This happened from January to July this year, non stop - and now Im suffering with my osteoporosis, which I think is due to not getting adequate sustinence (ie: broken/crushed vertibrae).
During conversations, it was noted that neuro thinks none of my gastric symptoms are ms related. So gastro think its related to ms (swollowing, slowing motility and spasms) so sent me back to neuro. Now neuro thinks its not ms related. Im about to undergo tests to see if I suffer EDS (Ehlers Danlos Syndrome) too, for which some symptoms may be connected.
I just wish someone would say: ah yes, we know the cause and why youve got it, instead of being batted around the nhs like a rubber ball.
Im now of the opinion that Im to be left in limbo, and would like to know other msers experiences with gastric issues and what their neuros say? Is it my fault??? - am I missing something.