Well after my increase in parasthesia, the hug from hell over the last few weeks (become intermittent now) bowel and gastro issues I saw the GP. He thought it all could be IBS - I don’t think he had a clue about MS hug stuff (I know it’s definitely spasm as when I took diazepam last year with the same issue I was 70% better). He gave me anti-bowel spasm meds to help - slaps hand on forehead and shakes head. I wanted some diazepam or something else as I’m flying away for a conference next week and the last thing I want is to have the hug suddenly again. I was so bad last wednesday evening that I couldn’t lie or siy and the care just seem to set it off. I almost carted myself off to A&E.
Not that I’m saying the bowel and gastro issues can’t be IBS - I think Rizzo once said a suprising number of people with MS have IBS becuase of vagus nerve damage (according to her neuro). So it’s worth a shot - though I’m looking into the diet for IBS and to be honest I don’t eat most that stuff anyway (apart from onion and garlic) and have tried anti-gluten stuff for a month a while back incase but made me constipated actually.
Does anyone else here have IBS and MS. Just wondered about your experiences / take on it.