I think these last two posts are the kinds of thing I was thinking.
When I got my Odstock FES system, there was an initial appointment to make sure it would work for me. Then there were an initial couple of appointments to make certain it was set up correctly for me and that I knew how to operate it.
The Odstock system works by you just phoning and requesting new electrodes, new leads and with any questions or problems. Recently, one of the connections was loose and all I had to do was send the unit back and they fixed it. A couple of years ago I dropped the main unit down the loo (could happen to anyone!) and had to return it for decontamination!!
All I have to do now is attend once a year for an appointment that costs me £300 (grr I’m a private patient as my local NHS service doesn’t pay for FES for people with MS). Any problems are sorted. I have nothing further to pay for. And for someone who isn’t a private payer, there’s never anything to pay.
So my initial cost was £1200 for year one and thereafter £300 per year. And I’m supported by physiotherapists at Odstock with questions and queries. If I want to adjust the settings, I can just phone them.
With the XFD2000D system, do you have any support? How do you get set up with the system? Bearing in mind that stimulating the peroneal nerve is different for everyone.
Plus, what electrodes are used? Where do you get them from? And what do they cost? Equally batteries and any other necessary peripherals?
I totally agree that it looks like a great system, but having been an FES user for quite a while, I wonder how supported the user of the XFD system is. It would be really helpful if you could fill us in on some of these questions as it’s a lot of money to spend.