I’m having a bad week, everything’s taking ages and is painful. My dad, bless him, said ‘stay calm and just do everything slowly like when you get old’. I know he meant it with love but I’m not ready to get old, he’s 65 I’m 31. I want to be able to go out, drink and have fun the same way my sisters and friends can
Hi Rebecca. Aw your dad sounds so sweet and although he really does mean well it doesn’t stop you feeling like crap at the end of the day. Listen hun, you can still go out and have fun, I’m just like you (but 41, not 31) I loved going out and having fun and wish I still could but it’s not so easy now. I tend to fix a date with friends for a night out and then make sure it’s a good one because I know it’s going to knock the stuffing out of me for a few days after. Even a meal in a lively restaurant and a few drinks can be fun, or invite people to your house/or go to theirs with a few drinks/chocolate/sweets and sit around chatting, it always ends up as a giggle after a few glasses of wine!! To be honest, the last couple of times I tried clubbing, I got all geared up to go, then by 10pm I wanted to go home anyway after spending the evening yawning my head off!! We just have to do what we can when we’re able. xx
Its hard isnt it are you having a relapse?what are you like when your not having one? Are you able to do those things when u feel well? X
I’ve had a cold so my nurse has dismissed it as that but my symptoms have been awful for nearly two weeks. I’m not too bad usually, things wear me out but I’m just uncomfortable not in pain like now.
If you’ve had a cold then it will most likely make your symptoms flare up. I had a cold about 6 weeks ago and it made my visual problems more heightened. Total pain but it did get better. Your dad is right, take it very easy for a while till you feel stronger. X
Sorry you are feeling so rough - I hope that things improve for you soon and that you start to feel stronger and less hampered by MS filtered word every day.
Alison
p.s. Your dad is right, of course, but I know that this (a) is not the point and (b) probably makes things feel worse rather than better!
Hi Rebecca
Sometimes when we feel rubbish, nothing anyone says can help even when they mean well.
A simple virus can really knock the stuffing out of us. When you consider how ‘normal’ healthy folk complain about having a rotten cold, then you can double or triple how it affects MSers. It will flare your symptoms up for some time. Just be kind to yourself and cosy up with a good book/DVD, box of chocolates and your favourite drink (either a warming drink or a nice glass of something). That’s all you can do until this bad spell passes … and it will pass. Life with MS is a roller coaster and all we can do is ride it out. When you are feeling a bit brighter, then arrange a ruddy good night out but make sure you have nothing planned for the next few days so you can recover.
(I’ve just booked a ladies night out with friends for the end of the month - two male entertainers and a drag queen plus a hog roast. I intend to rest up before and after so I can make the most of that - I have no intention of missing out on scantily clad hunks :D)
Tracey xx