hello, does anyone feel like really empty and like not a single person cares like they did when first got diagnosed?
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Hi Jess’ welcome aboard. Sorry to read how your feeling. Have you maybe reached a bit of an anticlimax after the horrible whirlwind has calmed down and, now you all have answers to explain what had been ailing you? Sorry for maybe a slightly coarse suggestion but, I don’t think I have the intelligence to word it better any more.
I suppose I’m quite lucky that this family has always been close and quite matriarchal since I was young. It can be like hens fussing around sometimes but it’s still nice to have people within reach.
They mean well but, they are quite a protective bunch. Things have been known here for a short while now so, they’re not all as inquisitive as they were when my first symptoms kicked in - I suppose they’re all more relaxed and reassured now that they understand I can carry on into old age but, I’m currently in a rut of feeling that I’m not achieving anything. (That’s probably just down to my new limits holding me back more than I like 
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Hi Jessica,
Sorry to hear you are feeling like no one cares, that must be tough.
I wonder if it’s not really about you, but maybe they are engrossed in their own lives?
Were you diagnosed long ago?
Alison
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I was diagnosed in November 2024
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Fairly recently then, but long enough that it’s not at the top of people’s minds perhaps. X
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hey jess, can I first say I am sorry to hear about this - it’s a horrible feeling.
I think MS is an inherently lonely disease in many ways, and makes for a lonely experience, particularly with the unseen symptoms and the mental battle that goes with it. I know how you feel, to an extent - I’m grateful for the support I have had, but with people swallowed up in their own lives and problems, it can make for an isolating experience, particularly when symptoms are most acute.
I would suggest you are not alone with, though - this forum is a great resource and there are many people with an understanding and shared experience. there are also MS support groups across the country - perhaps you could find one at the links below…
https://www.mssociety.org.uk/support-and-community/local-support/local-groups
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Hi, as you become too understand MS, people do also they see how well we cope. It just like yesterdays news is tomorrow’s chip paper. Just keep looking on here friends are always available. If you feel lonely or ignored SHOUT out and be heard. The squeaky wheel gets fixed. We have MS but still expect the best. We are worth it.
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