Hi, Getting a old hand at this M/S now, been over 20 years last 6years diagnosed with secondary progressive and now its easier to say what does still works than doesn’t work, sorry to say. Think I’ve tried most things over the years but am still open to suggestions, all I’ve ever lacked is support, empathy and understanding.I am sure most of you agree the only people that truly understand are the people with M/S. I have never really come to terms with having M/S and perhaps I never will now, people say you must to learn to live with it and not fight it but as most of you are aware it takes everything away form you, just need to find someone to talk too. Just lost both my M/S nurses and so far not been replaced, they were my support.Sorry to be negative but we need to help each other.
I am sorry to hear you haven’t had the emotional support you need Graham, it must have been very lonely.
I hope that you can find some community on here.
I wonder if you have a local MS Society group near you? My local group is lovely and very kind and friendly.
You might also find it helpful to ring the MS Society helpline. I rang them not long after I’d been diagnosed and basically cried down the phone at the chap. He was lovely and very supportive. He said I wasn’t the first and wouldn’t be last who had cried and it was fine and they were there to support people. Could be worth a t try for you 
I wish you well.
Alison
I know how you feel. I was diagnosed in July and I feel I’ve had no support. I’ve contacted MS nurse numerous times but I’ve never had a reply. No help with any professionals including GP. I joined an MS group in October i had comfort from them,but I still feel alone with my issues. Take care. X
Hello, I’m so sorry to hear that you have lost your MS nurses and as such support. Having MS is an isolation experience. I find myself at home most days. It seems so much worse now with the dark days and bad weather (UK). I know how it feels exactly as you describe. My family are so supportive and try so hard, but only those with MS truly know how it is. If you need support we are all here. We also completely understand!