My mum has had ms since 2007 and although she is lucky in the sense that her main symptoms are fatigue and anxiety, she has been getting worse. Back in 2007 they found a cyst structure on her spinal cord in her neck but this was only explained to her last week! She is really struggling to cope with being diagnosed with this aswell as her ms plus she’s currently 2 years post womb cancer. What is everyone’s experience of Ms support? My mum can never get hold of a nurse and when she does its a week later, even then she isn’t feeling supported. Our local doctors just wanted to update her tablets when she went and said she wasn’t coping. But ask her and she says sheshe had counselling before and it didn’t work. I’m started to struggle to see her so defeated and hopeless. It’s ruining our whole family. Talking to her doesn’t achieve anything as she just says we don’t understand, which we agree. We aren’t going through it. Does anyone have any advice? How can I help? How can I make her see she’s not coping as well?
Hannabelle,
If you can not get hold of an MS nurse you could try to ask the GP for help. Another option is to see if there are any MS support groups near by.I just googled my area and got some results so it might be worth a try.
Good luck
Mick
Is Neuro-psychology commissioned in your area? Your GP should know. They have greater understanding of ms related mental health. My husband started seeing one after a stint in rehab, although we had to get it commissioned as it was out of our area. He finds it helps.