Reading so many of these posts makes me realise that I Have not been alone, and there is so many young people like myself having to battle with their parents or love one fighting the monster that is MS. Day to day, and week to week you do feel like the only one, and in a way you are , as the symptons and everyone’s personality and cirumstacnes are different, but MS is the common dominator making us all feel this way.
I am struggling to find support on any of the MS websites for carers/ children that have cared for their parents that have recently passed away. I lost my mum suddenly in January 2015, at the age of 52. I am 24yrs and have never known mum without MS and I have had to watch this disease take over. I have been here sole career since 15/16years when live was becoming a crisis!
I have bereavement counciling but I just don’t feel that it’s unique enough, my mum was unique lady, and certainly one in a million.
I have had to grieve for many years , due to losing mum bit by bit, physically and mentally. But this is a whole different kettle of fish.
Having a real bad evening, don’t know where all this emotion has come from - wish I could make a cure and make mum come back MS free!