im wondering if anyone else feels like they’ve already lost the person who they care for?
5 years ago my mum was 49, full of life and energy. She had basically raised my son with me while I was a single mum, being an only child myself we were and still are really close.
Fast forward 5 years after brain surgery for trigeminal neuralgia and an ms diagnosis soon after, and things have gone downhill rapidly, my mum is now trying to retire from the job she loves, she can no longer go out even just food shopping As it’s too exhausting and her struggles with mobility have got ridiculous.
On Tuesday her neurologist told her it’s now secondary progressive which deep down we already knew. By Wednesday evening she had fallen at home & we had to call an ambulance.
she lives alone, I worry about her constantly and there’s really only me to worry about her.
i feel like I’ve lost the mum I once had, we can’t do anything together anymore and I’m so scared for what the future will bring.
has anyone else felt like this?
My husband is amazing & so supportive but all anyone ever says is “it will be ok”. But it won’t be ok, it’s not ok & it’s so so unfair