I’m a bit overwhelmed by everything just now, we all are I know but I don’t know if I’m alone ? My friends have all vanished now. The joys of having an illness that they think changes you I presume. No we haven’t fallen out with you but never invite me anywhere or see me so I stopped being desperate and asking. Am I alone ? Has this happened to anyone else ? I went to a couple of support groups too but no disrespect intended I’m a young 51 year old and was the youngest by a mile so felt out of my comfort zone !! Day to day symptoms are hard enough having a friend that isn’t hubby, mum etc isn’t much to ask
Ah love, I’m so sorry, I had this with 1 particular friend, we had been good mates for over 20yrs when I was diagnosed, she didn’t come anywhere near me, yes phoned sometimes, but generally stayed away, other friends were ok about it, anyway our friendship continued on a very touching basis, but last year, 13yrs on from me being diagnosed I told her I’d had enough, that I thought it was best to finish our friendship, as a telephone 1 wasn’t good enough anymore, I needed her support, baring in mind me and my hubby had supported her when her marriage broke down, took her in to live with us for 6mths, anyway that seemed to do the trick, she’s completely changed, has been more supportive, come to visit a lot more, at a safe distance of course, offered to do shopping and so much more, now I’m hoping this will continue, but only time will tell, but for me it’s told me that I’m strong enough to get on without her, because I was the 1 who was going to break it. Good luck love, I know what you mean about some of these groups, it’s not wasy when you’re still young at heart, I’m a young 61, still like a good laugh and being silly, nowt wrong with that, take care.
I experienced this following diagnosis and having difficulties. I was 21 when I was diagnosed and now had MS officially for 19 years. Sadly those that I thought were friends no longer phoned or invited me out. I’m lucky though I still have a handful of friends (2 to be precise) who aren’t bothered by it and still visit. I’m really disabled now and unfortunately dying of cancer. I’ve been given 12 months if I’m lucky.
I never attended the local MS groups as I was worried I’d be the youngest there. It might be worth speaking to your nurse and finding out if there is an she specific group as I know there are ones for people in their 20’s here in London.
Good luck. I hope you find something suitable and make friends soon