I’m really struggling with life. All my family and the disappeared 1 by 1 after I developed foot drop. It’s not something I asked for and now I’m completely alone. It’s been over a year since I’ve had a conversation with anyone, a far cry from the happy go loving person I used to be. How do I get new friends at 41 yrs old when i can’t even get my own family to care about me?
I can’t take the loneliness and solitude I hate everyday.
Oh Mina, I do feel for you and am sorry to learn how you`ve been left alone.
There is great difficulty now with covid and all the social groups have had to close. I would have pointed you in the local MS groups`s direction. but not now for face to face meetings.
But having said that, they may be doing something on line eg zoom.
I have lost 3 outings for social meets due to covid.
I am involved with my local day hospice. We have a weekly zoom to keep in touch.
How are you managing your day to day care? Can you cope with that by yourself?
I have care visits twice a day to get me up, showered etc and then to put me to bed.
I am not on my own, as my hubby is retired and looks after me.
How long have you had MS?
We are a friendly group and will try to support you.
Boudsx
Hi Mina, so sorry to read this. I am roughly your age (45), have had MS for 12 years and am sometimes very disappointed with my family not phoning me much any more. I think though that they still do love me very much, and, on the contrary, esp my mum simply cannot cope with seeing me sick, sad and panicky all the time. After all, I’m her child. Same with my sister. We’ve always been very close and I hear a worried tone in her voice when she calls me, which I know is because she’s anxious that I’ve deteriorated again. I really think the reason for this is because they love me so much. So, I try to call them a bit more often (doesn’t help that they’re livin abroad) and try to be as positive as I can. We also have kids and I don’t want them to miss out on their grandparents. Alternatively, the local MS society always has an open ear. And friendly forums like this are a blessing. Take care. XXX
Hi Mina1406, I would recommend using Facebook and joining up to the MS groups on there- some are public and some are private but not just MS groups, anything that you are interested in: tv shows crafts, shopping, house, garden, sports, food, photography, local area… are groups for everything these days. It is very easy to get chatting with people who have shared interests. I also play on a game online, which has meant making friends all around the world too. I’m sure lots of people would be happy to speak with you
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