just need to talk to people that understand as have never felt so low.I have had ms for the past 8 years and feel my walking is getting so bad that i stay in the house.gave up a job i loved 8 years ago as just could not cope with pyhsical or mental side of it! have numerous problems such as need to catherterise and now problems with the dreaded bowels.just feel like slowly bit by bit things are being taken away.I have a lovely family but my poor husband must get fed up of me constantly being tired and not able to do much.It has such an impact on family,i have two teenage girls who i would love to be able to go shopping with them but cant.feel like everyone is having a rubbbish time cos of me.am normally so positive but find it hard to put on the smiley face.friends have slowly but surely disappeared and i tend to have just a handful left.Honestly if it wasnt for the impact it would have on my family i wish i wasnt here sometimes.
Hi Anon I’m sorry you feel so low, ms does seem to have an impact on so many of us me included. You say you’d like to go out shopping with your teenage girls do you have a mobility scooter? If not you can hire them foc at most shopping centres I think you may need to book in advance though. Do you go to any support groups? Life dosent have to end because of ms, my mum always says to me where there’s a will there’s a way :-/. I spend many long lonely days & nights on my own & like you friends have slowly dissapeared and I can count on one hand how many there is left and its not a lot. Pm me if you want to chat ((((Hugs)))) Sue xx
Hi Anon,
MS can be a right (insert expletive of choice) and it is hard to describe how you feel to people. What I would say is that MS can affect people mentally as well as physically. There is no shame is seeing your doctor for medication to treat your low moods.
What Sue said about a mobility scooter for shopping would help. How about some on-line shopping too. You can look with your girls at different websites, see what takes your eye and then plan a tour of a local shopping centre. That way you are only going to the shops you need to. Even if it is only for 1 hour it would still be better than sitting in the house and would brighten your day.
Take care hun
JBK xx
I know how you feel, I felt the same. I eventually went to see my doc and he suggested anti depressants, something I said I would never do. Anyway to cut a short story long I agreed and it transformed my life. I was put on Citalopram and it had unexpected bonuses. For some reason my legs got stronger ang my urgency problems got easier. Probably wont work for everyone but worth considering. It has made me a lot happier. Gary
Hello, like the first 2 respondents, my answer would be to get yourself some wheels.
I hve been through the stage you are at right now hun.
Please dont think wheels mean the end of the world…far from it…in fact it can open up a whole new world for you…honeslty!
Shopmobility is a wonderful service. I used them a lot, before getting my own scooter.
I have been a full time wheelie now for over 10 years. I consider my wheels by best friend…without them i wouldnt only be houseboud, but bed bound too.
Life is still going on and we need to keep a part of it as long as possible.
First thing to do is ask for a wheelchair assesment from your Socal Services. There may be waiting list, but before you get your own assessment, you could give Shopmob a try, eh?
I know you are feeling pretty low just now, but once you get wheeling youll wish youd done it sooner.
Come on, join us wheelies who all have been where you are now.
lots of extra special love (and not many folk have had that!)
polly xxxx
Forgot to mention I use my buggy all the time, thinking of forming my own chapter of bells cripples. The kids think it is cool and it means I can go where everyone else goes. The n bonus is I get a beer under my own steam
sounds good to me!
polx