Hi this is my first time on here so I’m nervous. I’ve had MS since I was 14 and I was ok until I had my daughter in 2016. Every thing got worse, I’m permanently in a wheelchair and can only take a few step with my physio but it’s difficult. I feel like I’ve lost all my friends because I can’t do what I use to do. The only people I see is my partner my daughter and carers. I’d love to have more support and get outside and do things but there are not any support groups in my area. So if there’s anyone in my area that wants some company please get in touch.
Hi Bev1, I think there will be a lot of folk on here who can sympathise with you. One of BIG FRUSTRATIONS is not being able to do what I once could 
I see my family and friends just getting on with life and I feel left behind, I don’t get to go out much and when I do its only for an hour or 2, only to be left so fatigued it takes me day’s to get over it. You were so young when diagnosed, such a hard thing to get your head around, you don’t mention how old you are now, or for that matter what area you live in, so if you wan to know anyone in your area please say. This is one of the things I spoken to my MS nurse and GP about, the lack of facilities in my local area, yes we do have a local MS society, but at the moment they only do coffee mornings, which to be honest isn’t the only thing I would want to do, but hey we’re all different. So anyway love I really hope someone pops up on here that is close to you and can advice, good luck and chin up.
Jean
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Hi Bev, oh love…to have MS at such a young age is truly awful!
I am sorry to hear there aren’t any support groups locally for you.
Is there a Well Woman centre?
I’ve had PPMS for 25 years and am a full time wheelchair user.
Last year, cam to a crossroads in my life. I felt I couldnt go on.
Jesus answered my prayers and now I have new church friends and life is a million times better.
He will help you too you know?
love Boudsx
It is still a surprise to me how this disease can shrink your life. I no longer do the things I used to, see people or go to places that are outside my local area.
But, I count myself very lucky. My disability is not too bad at the moment, I have a few friends who make and effort and I have my family. I’m now in middle age so I feel I’ve lived life, at least a bit.
Your post saddens me because you’re young - you deserve more and I wish I could suggest a way to meet people. Sometimes I just want to forget all about MS and just banter away with a stranger.
One thing I do everyday is to go through all the positives still in my life. I’m trying to rediscover my passions that were a big part of my life before children and the diagnosis. Reading is always good as is talking to people. I avoid dwelling on bad news and having a good laugh is great, but admittedly sometimes easier said than done. Fresh air and nature, good food make me feel better.
I wish you all the best.
S