It all started about a 4 weeks ago.I got really stressed and woke up and my muscle felt very fatigued and tired quickly. Then about a week after this I noticed my left shoulder was weak which has gradually got worse. And kind of didn’t feel like it was part of my body. Not number but u don’t now just a strange feeling. I was also getting buzzing in my elbow joint. Then since that 3 weeks in. Both my arms and hand get really bad fatigue Mainly my left side. Like holding a phone up to my ear weights about 3 tons in my left arm. Then during this my little finger on the inside felt slightly numb.and the right side of my tounge jaw and lips have gone weak. And to top it if now all my upper muscles are really stiff and sore. Can a relapse causes this and when will it end or stop progressing
*not numb but I don’t now
Anyone ?
Hi siyman
I don’t think we’re all deliberately ignoring you. For my part, I’ve never had a relapse that’s affected quite so many different bits all going wrong one after the other. Mine always tended to be concentrated on one area, or one side, e.g. optic neuritis, or my left side would go numb, or one arm. It might be followed up by something else happening, but I don’t think I’ve ever had a relapse that sounded quite like yours.
Have you got an MS nurse? Or is there a general neurology nurse service? Or maybe ask your GP for some high dose steroids? If you had someone who knows you and the pattern of your MS, you could discuss with them what’s happening and what you might do about it.
Sue
Hi sue. I probably made it sound more complicated than it was lol. First I had fatigue all over. Then that kind of went away. Then my shoulder started playing up followed by fatigue and bad muscle stiffness mainly my left arm. I think that’s why I’m more worried because in the past it has been just say one area. But this seems to be like a gradual worsening of symptoms
I think some relapses started slowly and gradually got worse. And of course some stayed hanging about like unwanted guests for bloody ages.
You might have missed the optimum time to have some steroids to shorten the relapse now Siyman, but you could still try. If you’ve not had any for some time, it might be worth trying. You probably need to get some medical help, either a nurse or your GP?
Sue
hello siyman
your complaints sound similar to those which marked my last relapse, which in turn prompted my diagnosis.
you sound like you want a definitive answer and so here it is, from the opinion centre of my own, unprofessional and unqualified brain:
yes you are having a relapse.
you should go to a hospital with a neurology department; go to the A&E dept; tell them of your symptoms. they will test for a stroke etc… maybe even get you a CAT scan, but they should / will also find the neurologist on call who may feel inclined to give you a dose of steroids in the hope of minimising the extent of this apparent relapse. (although this might be too late now)
alternatively… you can sit it out. avoid stress like it is the plague and sleep as if you are paid to do it!
how long it will last and how much worse will it become before it starts getting better… NO ONE IN THE WORLD can answer this for you. sorry.
good luck!
Hi sue and Paolo I’m still kind of in limbo TBH. When I was 19yo I had on in my eye that took 4 years to diagnose. I’m that time I had a host of other symptoms. I was under a neuro who followed me up a year later. It was abit of a shambles because they mixed my appointment up so she didn’t have my notes. I had a mri that came back normal. She offered me a lp which I didn’t fancy at the time because I felt well enough. She always offers to give me a MS nurses contact which I though strange seem as I wasn’t diagnosed. When she sent a the letter to the doctors after my visit she wrote possible one delmayliating episode but he may of had more but didn’t have his notes lol. Fast forward to now I’m 27 . Ive had issues with my knee my arm etc and I usually get better. But I’m having a ton of problems at the minute and the doctor refered me to a neurologist that was 2 nearly 2 months ago still waiting lol. So I paid for a private one who it could possibly be MS. And said he will try and get me under my nhs appointment so he can order another mri seem as my last was 6 years ago . Also I went to a and e and the women who I saw was really rude. And said there wasn’t much wrong with me. My symptom sent that visible
My worst relapses have gone off like a firework display - all kinds of things going awry, mostly in overlapping succession, but some things happening at the same time. Very frightening, very damaging and (in my case) nature’s little way of telling me it was time to switch to Tysabri. Each individual component definitely had a characteristically relapse-like trajectory of ramping up over days or weeks, peaking and receding as much as it was going to in the same sort of way as it had arrived. In other words, they had MS written all over them - there was no doubt about it.
Alison
Hi siyman, I’m no good I’m afraid at offering advice but for me, my body does these thing s all the time but never ongoing, one day I have a dead foot, next day and for a week my shoulder hurts, then I can get tingly fingers that don’t work. Then my back hurts, it is like someone is shuffling my dice each morning. So in that respect you are not alone, I laugh in the morning and swear very bad words at the particular symptom of each day. However, if something is new and sudden and not one of the hundreds of things that has happened to me, I phone the nurses. Sometimes, if I get a long term appointment the symptom has gone, sometimes a new thing will continue and be a pain in the but which needs support i.e. leg support, back brace or something specific.
One thing I never do or try to avoid is stress, bet most of the people on here will tell you to device a way of avoiding it, it is like poison for our symptoms and our bodies don’t like it.
Thanks everybody for the replies. Just hope they can find out what’s wrong with me then I will be able to get some medical support. I have been really bad last 6 months. Just moved into a new house and me and my partner had our first baby. So I don’t now if the stress of it all has caused me to flair up. All these problems at the minute followed a huge stressful moment
Hi again
I think all the varied replies you’ve had tell you that MS is a bugger in that it’s different for everyone. The stress of a new baby can obviously spark off hidden problems.
It sounds like you should chase up your neuro appointment asap. You’ll need to have another MRI of course, and that might nudge someone in the direction of a diagnosis.
Hopefully things will settle down and you can enjoy being a parent soon.
Sue