Hello I seem to be getting increasingly shaky - my muscles in my body are getting worse & I find my hands & legs seem to shake although at first imperceptibly to others it’s now getting more noticeable. I’d love to hear from anyone else who may experience this - especially 2 things; Firstly, can I do anything to calm this? And secondly, is this something which is likely to get worse? I’ve looked at the tremors information in the ms library but don’t feel it’s intention tremor. I can feel my teeth chattering when lying in bed not exerting myself so it doesn’t seem to fit with overdoing things. Thanks for reading this. Jane xx
no answers so just bumping it up
kim
My hand tremors ease when I’m performing an action, unless I’m pointing with one digit or counting using fingers. In terms of taking photos or editingn or typing though, it goes away. Is there an opposite to an intention tremor? I have an intention tremor in my tongue of all things.
Hi,
My tremor has gone from not being noticeable to being very noticeable now, and the MS nurse has written to my gp to suggest I go on propanalol. I am still waiting to have a definite answer from the gp, as he is worried because I take warfarin, so I cant tell you whether this medication is any benefit or not.
Perhaps it would be worth you having a word with your MS nurse to see what they suggest.
Sorry I cant be more help.
Pam x
Unless I’m very tired or stressed, I do not visibly tremble, but I have a constant buzz / internal shake in my hands and into my arms. It is not pins and needles, but something I liken to a fridge element buzzing in the background or a car engine on tick-over.
Thank you for your replies. Kim - thanks for bumping x Mrs Chicca - not sure of what’s opposite to intention tremor but I find I can perform some tasks if my tremor’s not too bad and my symptoms ease, but if my hands are really shaky then trying to perform precise tasks makes them go worse. I’ve left a message with the MS nurse & hope he can suggest something. Sorry your tremor has got worse, Pam - I hope you manage to get the right medication to calm it. Loolaa - I get that in my legs and bottom when I’ve walked for a while! It’s just like a fridge element, like you said. Most bizarre Life’s never dull, eh? Xxx
The shakiness in my legs is due to spasticity, the tremor in my right hand is literally that… It seems to worsen if I lift my little finger/ring finger on that hand.
Unofficial advice (and not so good for daytime!) is nicked from someone else’s post/MS nurse 
- A glass of red wine helps, I’m perfectly serious, it helps me anyway.
I take Baclofen for the spasticity and I’ve likely got PPMS BUT my tremor does seem to have calmed right down so there’s a possibility the baclofen has helped but I do only take a low dose as it makes me so tired.
I’ve been reading up and Baclofen is the 1st choice of the spasticity drugs, but that’s not to say it’s the best or that it works for everyone - you know the drill, we all have our own version of MS
Sonia x
That’s interesting Sonia. Thanks for posting. I’ve read up on Baclofen & it does seem to be the most effective drug for spasticity so I’ll have a chat with my ms nurse & see what he thinks. Meantime, I’m never too far away from a glass of red wine ! Xxx
My legs are terrible! And the weaker they become the more they do it. My legs tap like crazy and won’t stop up and down up and down drives me crazy!
So no how you feel 
Oh Tessbaby you have my full sympathy. That would drive me mad & must be really distressing Jane xxx
Flu vaccine I am not yet diagnosed with ms, I’m having some Symptoms mainly pins and needles and lethergy and limb Weakness and swollen tongue. I’m Being treated with vb12 inj which is helping . However I have recently had a flu vaccine which Has made my symptoms much worse . Has Anyone had this problem and I guess my question Is if so how long will it take for my symptoms to settle back to A manageable level . I’m afraid that things won’t improve . I appreciate any thoughts On this Please Many thanks .
Hi Lisa JO. I’ve seen you’ve opted this query in New Diagnosis and Before Diagnosis and now had some good replies. I’ve never had a flu jab so I can’t comment on the link between that and feeling worse but I’m sorry you’re experiencing worrying symptoms and I hope they quickly start to clear for you. Jane xx
Dear Jane, I had tremours as you described from Nov 2012-Mar2013. Although it affected my whole body, it wasn’t perceptible to others apart from when my husband cuddled me he could feel the vibrations. Even when in the resting state it was present, but it was more noticable when limbs etc weren’t supported eg holding up a hairdryer, typing without arm rest. Going downstairs my legs felt so skaky and out of control. A neurologist told me to “chill out” as the stress I was feeling was probably exasperating it. But you can’t just switch a stress button off can you? He wrote to my GP and said there were 2 drugs I could take that may help. However I didn’t want to mask the symptoms. It was before my diagnosis of MS and I wanted to be aware of what was going in in my body. A friend who was quite knowledgable about MS due to a close family member of hers being affected e-mailed me 2 articles about vitamin D research and MS. After reading these I put myself straight on a daily supplement and within a week there was a huge improvement!!! I’ll never know if this was due to vitD or co-incidence but I still take vitD now as a precaution. I can really sympathize with you Jane. It was such a worrying time for me and the symptoms took so long to resolve that I thought it would never go away. Best wishes, RedShoes xx
Hi HR
The two types of tremor::
Essential tremor. This is commonly seen in people with Parkinsons Diosease. More or less constant it is technically of high frequency but low amplitude - meaning the movements are small but fast.
Intention Tremor. This is fairly common in those with MS. It is the opposite to the first - low frequency and high amplitude. In practice, you “intend” to do something and (say) start to move your hand, which then shoots off in a different direction and back again. It can take a lot of forms and all of them are annoying. All you can do is to force the affected limb to move very very slowly. Putting a forkfull of food into your chin is not very nice - particularly if you have a beard!
Bottom line - Propranolol may work for some people, but not all.
Geoff
hi there ive just been put on baclofen and it seems to be helping a little ijm also now on steroids and still waiting to see iff they will help me also still waiting to see an ms nurse as ive just recently moved in with my partener and have had to register with new gp bust she has been brilliant with me so far so cant grumble to much lol
I think mine is more essential then. Although I’m unsure. Fingers move loads in various directions, but it’s when I have my palm open not when I’m grasping something. It’s also visible in each digit when I raise that digit, or point, etc.
Thanks Redshoes. It’s encouraging that your tremors stopped after a few months. Your experience sounds very similar to mine. Geoff - thank you for the summary. I read up about tremors but I couldn’t quite find the box I fit in - which is ms all over! It def isn’t intention tremor at the moment, unlike mrs Chicca’s seems to be. It’s more of a low buzz that makes me shake, only recently I’ve been made aware that my legs start to shake when I stand or if I’ve walked a distance. All the replies have been so helpful, as ever. Thanks to all for taking the time to help me out Jane xxx
Thanks Redshoes. It’s encouraging that your tremors stopped after a few months. Your experience sounds very similar to mine. Geoff - thank you for the summary. I read up about tremors but I couldn’t quite find the box I fit in - which is ms all over! It def isn’t intention tremor at the moment, unlike mrs Chicca’s seems to be. It’s more of a low buzz that makes me shake, only recently I’ve been made aware that my legs start to shake when I stand or if I’ve walked a distance. All the replies have been so helpful, as ever. Thanks to all for taking the time to help me out Jane xxx
Hello there, I have trmors in both of my legs and neck. I have had ms for around 12 years now. You just have to try not to get stressed out about your tremors.