DMD's & alcohol

Everyday living
1

Hi all

Recent dx and have been offered DMD’s which I’m keen to accept.

I’ve done the MS Decisions website about which DMD but some/most of them appear to hint at no alcohol !!

Now I’m partial to a glass of wine and/or a beer so my question is

Which DMD are you taking and is alcohol excluded or should it be

Thanks

Adam

2

heya… ive been on rebif since april…i asked my nurse that question as i am also partial to a glass of wine or two :slight_smile: and was told its absolutely fine… obvs in moderation but hay thats what all doctors advice.

good luck with your decision.

xx

3

Hi Adam, I’m on Avonex and was told by MS Nurse that alcohol is fine. Same old “In moderation”. Been on Avonex and Alcohol since April with no problems!!! Rob.

4

i’m on copaxone and alcohol not a problem.

but tizanidine! only a couple of sips and the room started spinning.

so i dont take the tizanidine if i’m likely to have a drink!

carole x

5

Hi Adam

Just want to echo what has been said above. I was told “in moderation” but keep away from the spirits. That’s ok as if I am gonna have a tipple it will be wine.

Shazzie xx

7

Hi Adam

I was on Rebif for 4 years up to this September. I always found I could have the odd glass of alcohol without a problem.

I will never forget one conversation I had with the nurse at one of my check-ups in the first year. I had missed my staff Christmas party the previous year as I was in hospital with my first ever symptoms so I was determined to make up for it the following year. Christmas was approaching, the staff party was on a Friday and this coincided with injection night and I always did my injections at bedtime so I could sleep through any side effects.

I mentioned all of this to the nurse and told her that if I was anywhere near as drunk as I planned to be, I would be in no fit state to give myself the injection. I asked what she suggested. She was one of the older nurses at the hospital and she fixed me with a steely look and said “If you must have a drink, I suggest you switch injection night to Saturday and then go back to Monday, Wednesday, Friday the following week.” To this day, I don’t know how I kept a straight face!!

Tracey xx

8

Do your injection before you go out Jen. Then drink in moderation and see how you feel. I’m sure you will be fine. I did actually find, once I was an ‘old hand’ at injecting that I could do them when I was slightly inebriated. I like to think I was just proving the nurse wrong ha ha.

Good luck for Monday, I’m sure you will breeze through it. You seem like a strong person with a can-do attitude

Tracey x

9

First of all I’m not diagnosed or on copaxane (‘in limbo’) but Elmo’s comment made me smile.

I have another disorder which often requires periods on drugs that I have to self inject. First time around I was horrified at the whole concept of self injecting but hubby was lovely and took over doing them for me - even getting up at 3am when the hospital messed up the time of the shots. The first time I injected myself was after a large glass of red and was definitely attributable to ‘dutch courage’ - though probably not an approach the docs would recommend.

10

I’ve been on Capaxone since 2004, I live in Belgium, so of course I can’t stop drinking the beer -:). Also in moderation. No problems at all. Greg

11

Thanks everyone these answers have really helped - possibly indicative of too much fondness for drinking :slight_smile: