Just need to off-load. Just about to go and see the nurses on a routine appointment. Suffered a relapse in March which got the better of me at the end of April so contacted the nurses help-line, left a message and it took them 5 days to ring me back. Following a conversation where I explained what was going on and asked if I could have a course of steriods they explained that they were unable to fit me in before the beginning of June at which time I had a scheduled appointment anyway. Their only advice was to rest. Anyway I was feeling that rough I contacted my GP (that was a waste of time). Relapse is now over but the service and help (non) I received was rubbish and left me feeling very alone. Has anyone experienced similar and what are we ment to do if we are feeling this bad?