I wouldnt worry to much, Ive often asked my ms nurse things that only my consultant could tell me and its not been half as bad as i often worried it was. Hope you get some news soon.
I already knew I would be diagnosed on the day I went to see the neuro for my results, so I was in a very similar position to you.
Even though I hadn’t seen the MRI results, I had a sort of sixth sense they’d show new lesions, because of how rubbish I was feeling, so I didn’t think there was much chance of being told: “It was nothing, you’re fine”.
It’s still hard, even when you go fully expecting it. I didn’t cry, but came home and polished off a bottle of wine.
My worried mother said: “You shouldn’t be doing that!”
“Why not? Will it make me ill? Mwahahaha!”
Worrying about the evils of alcohol did seem a bit redundant, in the circumstances.
I didn’t want an MS diagnosis; nobody does. But it did end months of speculation about: “My God, if it’s not that, what if it’s something even worse, that nobody’s ever heard of?”
Overall, I was a bit better for knowing, I think. I didn’t want to be sent home and told they’d try again in another six months.
I completly understand being worried, i knew i had ms on the day i was going to find out but was still shocked when he said the words to me, i even cried when i came out of the hospital but i think that was more relief of knowing if that makes sense.
Hi G, If it helps I’m in same position, know more lesions on MRI but all neuro said in appointment letter was significant implications. Whatever that means I’ll find out on Friday. Thinking that 1 bottle won’t be enough and perhaps fitting an infusion of Chardonnay might do the trick! I think it will be a relief but on the other hand how will I cope with the implications on a dx for me, being selfish, and for my husband and our 2 young kids. Whatever happens I am very grateful to the people of this site, Karen, Tree, Anitra and all those who have never met me but have been a huge support. Whatever happens for your appointment I’ll be thinking of you, at least we know what your going through, for me that helps! Chis x
Hi, good luck with your appointment, sure it will go fine, don’t read anything into neuro not passing info on to nurse, he probably just wants to go through it with you himself, after all you might have then asked a question that nurse wouldn’t be able to answer, neuro thinks it will be better just to tell you himself, I’m sure that’s all it is. I’m not joining in with the wine, but I will have some chocolate instead if that’s ok. Cheryl:-)
Well back from appointment a few hours ago and its official! I am the newest member of the gang - Hi
Diagnosed with RRMS - Stopping taking Gabapentin (Not working) and now have to decide what Disease modifying drug to take!!! Once started on that we will look at dealing with the symptoms!
Waiting to hear from MS nurse to discuss options… The next big decision
Can’t say i’m surprised and possibly quite releived… Funny though he kept talking about Brain damage and
not wanting to get any further Brain damage and i’m sitting there going stop talikng about brain damage Ha Ha
The real issue for me is that he said that the symptoms (Sore feet, dizzy, tired, stiff etc) I am experiencing will probably never go away, This is me!!!
I’ll show him
Anyway thanks for your support. I’m now just waiting for the big slap on the face by reality. Anyway going out for dinner
with my wife tonight (Can’t afford it but who cares). Sister in-law is watching the girls so 1 more glass of wine… I know - Total rebel! On a school night as well!
Take care all.
G
!!! Just a few more exclamation marks to add to all the rest
