Thank you all for replies.
Yes I will try and find out more about lymph massage and try and get my carer to have a go…sounds great. Hes done normal massage , but I’m gathering lymphodema massages are slightly different.
I’ve ordered my compression socks on a uk site …I only manage to get one socks for one leg from my gp…lol…they forgot the other leg. So I bought the other . Am using them already . I have white liners , inner socks, then an outer beige compression sock . I’m noticing difference already. Less tight, less pain, less discomfort , but too early to see if swelling really goes down.
I was prescribed JOBST ULCER CARE COMPRESSION SOCKS . They are a bit dear …but if you ho too cheap, they lose elasticity quickly . So I’m hoping these will last a long time. I also bought wrist gauntlets … I’m looking into Epstein pressure bandage for my neck edema …but need to check with ENT first. They might make my bruxism worst.
Yes I did get measured by my district nurse …my legs I mean. But it took about 6 week before I got my compression sock. So from now on , I will order and pay for JOBST brand compression myself , as I dont want to hassle my gp. I did try buying other brands from start from amzon, but ending up sending them all back, as they were rubbish, too tight, too big, etc…so I asked gp for help. Even my chemist wouldnt advise me which to buy over the counter … …so I had to get them on prescription . Now I have brand name , I can shop with confidence. JOBST are brilliant…and made in usa …so slightly harder to get hold of in Britain.
I almost forgot…my gp prescribed FUROSEMIDE water pills to help get the swelling down. It’s working slowly. I’m on 40gms a day. It’s quite a strong pill, so it’s for the heart, liver and kidneys as well. Doesnt work for every though apparently , everyone reacts different to this…so they give you a small trail of low dose first.