Hi i don’t post very often but would like your advice!
My legs in winter well mostly the right one just never get warm, i no that i don’t move very much as the right leg dosen’t really work at all now. But the pain i get when it’s cold feels like it’s going to snap, and the people who touch it say it feels like a dead body (morbid i no but it really does) if i put a cover over it after a while i have to take it off because the pressure of it really starts to hurt.
I no summer causes people with ms a lot of problems (me included) but i hate winter the most not being able to get out long dark days and nights etc!!!.
I had two spinal taps when having my kids and had the same feelings then not the cold but the horrid feeling of not being able to move my legs, and the pressure of having covers over them, had to ask the nures to remove them.
But really does anyone else suffer with this? and any advice how to keep legs warm?
Might not be suitable for you, but I get freezing feet, no amount of socks, hot water bottles etc helps, but I do occassionally use Deap Heat cream, which works a treat! I’m not sure if its suitable for long term use, maybe you could ask your GP or nurse? Its a bit smelly, but, oh the relief!
The good thing about following issues raised is that often covers something that is on your own mind. I also suffer from a cold right leg and it often feels “dead”. I feel MS is linked to blood-flow so getting oxygen into the leg / extremities appears to improve movement, not easy when exercise is so difficult. Is CCSVI linked to blood in the brain?, I am doing what I can to exercise my leg and hope this improves things. Good luck.
No help I am afraid, but just to confirm you are not alone, my lower legs and feet are stone cold, both summer and winter. I have to use an electric blanket to pre heat the bed all the year round.
The physiotherapist, even says , that if she could only see my feet, she would assume that I was dead.
I consider it is definitely due to my MS. Before I had MS, my feet never got sweaty in hot weather, or cold during the winter. I rest my case.
Take care.
Chris R.
I. El. (Eng). (Rtd).
I know its going to be a bad day when I get out of bed and miss the floor, today is such a day.
I too suffer extremely cold feet and hands in winter. Ive just discovered tonight that if the house temperature is around 25o I thaw out, yes literally. For some reason a matter of one degree can make a difference. People have also commented to me that Im like a corpse which isnt nice.
The cold makes me feel so ill I hate winter. Summer now is a blessing. Ill never curse the sunshine ever again.
My son says Maplins have heated gloves and socks. Try get some and keep your tootsies warm hence the legs will also warm up, failing that a water bottle.
Im sure ms affects our temperature control. Neuros will know however suffering extremes makes us ill, so why isnt the fact we find heating our homes difficult in winter if on low income taken into account when heating allowances are given out?
Hope you can resolve the issue. Long may you stay nice and warm thus feel a lot better.
I’ve just bought a pair of fleece trousers - very light and soft and oh so warm! they have made a big difference to me and cold legs/feet when I am in the house.
I also have a pair of fleece leggings I wear under my normal trousers for outside.
Even in a warm house when the rest of me is warm my right leg is still cold hate the feeling hate the cold tried most of the things guess it’s just another thing to put up with roll on summer!!!
Hiya - I too suffer with either severe burning or the feeling that my right leg is in an ice cube bath. Its really horrible as nothing I do seems to help I am taking 1800 mg of Gabapentin but this doesn’t seem to be helping too much.
So are your legs really cold or do they just feel cold? Its just I’ve started to regularly experience mismatch in the temperature of each limb, be it an arm or a leg, compared with the other, eventhough they are under the same environmental conditions,though I would never describe them as ice cold. Are we talking about a circulation problem or a sensory malfunction, or possibly both for different individuals?
So are your legs really cold or do they just feel cold? Its just I’ve started to regularly experience mismatch in the temperature of each limb, be it an arm or a leg, compared with the other, eventhough they are under the same environmental conditions,though I would never describe them as ice cold. Are we talking about a circulation problem or a sensory malfunction, or possibly both for different individuals?
[/quote] It is my right leg that gets really cold my left leg is not as bad, but yes at times is ice cold. And if it gets to this point it really does take hours to get warm even over night in bed when i am nice and warm it is never as warm
My friend has just told me about a foot warmer from scholl, you put both your feet in together and turn it on.She said it has fleese on the inside and then you turn it on like an electric blanket i suppose. Don’t no if it will help my leg but i’m going to find one and try it out! i’ll thet you no how it goes.
hi,the thing that has really helped me is the Circlation Booster. My husband jokes about my legs looking ‘dead’ too! I got my circulation booster as an early Christmas present last year, and it made an almost immediate difference,and am so glad I got it, no more dead feet!
I have heard good and bad about the circlation booster some like you Lynne think its fab others say no difference so don’t no what to do they are a lot of money and i need so many things don’t no if i can afford to take the chance at the moment but so glad it has made a difference to you
I quite often get hot and cold spots anywhere in my legs, but wouldn’t say my whole leg. Last night for example I had to keep feeling my sock because my toes felt cold and wet. I kept thinking I must have a wet sock, then would feel my sock and it was dry!!
This is the first time I have even looked on here, despite being diagnosed over 3 years.
The reason: I am sick of partner saying that my cold feet and hands are due to circulation problem and not MS, even tho I have had circulation checked and its fine.
I have very little feeling in feet and fingers which is frustrating, but not as frustrating as the pain from the freezing cold toes and fingers that I have. You’d have thought if I cant feel them I wouldnt feel the cold, oh no such luck.
Despite being in a warm room with several pairs of socks on they still hurt and as Ive read here they feel like a dead mans!! My other half makes me feel guilty when he comes home and I ve had the heating on, and he says it feels like the tropics!! not to my feet it doesnt.
Sorry to say Im actually glad Im not a freak and not alone! Roll on the summer, ahh just to feel the warmth on my bones.
I am taking 1800 mg of Gabapentin but this doesn’t seem to be helping too much.