hi everyone. Yet another sympton am wondering about which hope someone can help or advice me on… ive noticed my feet becomming veryyyy cold(right foot the worst) and yesterday they were so cold i noticed some sort of red sores on most of my toes in the evening…its hard to explain as they are not blisters and not chilblains(which i have had before) they look like the blood has built up and left small red dots on toes.They are sore to touch and walk on Has anyone else experienced anything like this or similar and also would this be classed as a relaspe? never understand whats a relaspe and not?
Doesn’t sound overly MS related to me. Process of elimination here: sounds like you have not been wearing new shoes. Or not taking hot baths when feet are cold. It could be swollen feet, sometimes steroids cause this if you have taken them recently. May be see MS nurse or GP? Athletes foot, Hives or olso something called pompholx ( a type of eczema that stasrts on feets and may go to hands. So it could be many things. GP should be able to help sooner than MS nurse probably. x.
Hi Sorry to hear about your feet. What you describe is exactly what I currently have on my left foot (bad ms leg-have limited movement in ankle).it is SO sore I am finding it difficult to put any weight through it. I asked GP,chiropodist and reflexologist last year as I had them last winter too. Nobody had any ideas. I am going to go back to GP and ask for referral to a vascular person as I am sure it must be linked to circulation. I think sitting too long aggravates it and am trying to lie with feet higher than my heart tonight to see if helps at all. I don’t think just lying down is enough. I will let you know if I get anywhere and if you find any solutions to ease the agony please let me know. Cheers Sheina
I would class this as a symptom of a relapse. I get this and the pain can be excruciating! I do find that massaging and hot water bottles work well. It is a frustrating symptom but in my experience it improves after I focus on putting feet up lots and keeping them warm.
I went for my yearly check up with a consultant on Tuesday and told him about my feet being super numb, cold and changing colours (purple and maroon) and small skin abrasions that take ages to heal and red and angry looking (can’t feel any pain due to very numb feet). My consultant told me that this is not an ms symptom and that I should check on circulation issue…
I don’t believe that this is not an ms issue - I think it is. In the past when I have spoken about my invisible symptoms I have often been told by the Doctor/Consultant - “that doesn’t sound like MS” That’s not something you get with MS, it makes me worry that as well as MS what else could be wrong with me. One consultant said I could have suffered a stroke when I told him of a 2 hour episode when my left arm and left leg stopped working. He said that’s not a relapse as it didn’t last for days or weeks…
Has anyone else had this experience when explaining symptons to their MS Doctors?
Thanks for replies. I’ve had blood test done n waiting for results…docs r checking it’s not something to do with my blood clotting…I think it’s something to do with circulation…and like u Sheina it only seems to be my left f root affected…it’s left foot that gets painfully cold n these blood marks appear n don’t have chance to heal before new ones appear…so I do think it’s msg related cause surely it would happen to both if not?
Smassive I’ve got similar thing when talking about ‘relaspses’ with nurse,apparently numb feet or double vision only lasting for a short amount of time does not sound like relapse because if it w a s it would last for days or weeks…but I’ve never had any symptom last for long tome, n the only symptom I did was urine retention which I can now control using catheters… so sometimes I think I’ve never actually had a relapse?am I just gradually getting worse?
Thanks for replies. I’ve had blood test done n waiting for results…docs r checking it’s not something to do with my blood clotting…I think it’s something to do with circulation…and like u Sheina it only seems to be my left f root affected…it’s left foot that gets painfully cold n these blood marks appear n don’t have chance to heal before new ones appear…so I do think it’s msg related cause surely it would happen to both if not?
Smassive I’ve got similar thing when talking about ‘relaspses’ with nurse,apparently numb feet or double vision only lasting for a short amount of time does not sound like relapse because if it w a s it would last for days or weeks…but I’ve never had any symptom last for long tome, n the only symptom I did was urine retention which I can now control using catheters… so sometimes I think I’ve never actually had a relapse?am I just gradually getting worse?
Same here with this symptom. I dont think your consultant is correct only in that it is probably secondary to your MS if you aren’t very mobile and therefore have poor circulation.
When going through a bad patch of being woken up during the night by freezin feet i wear cotten pedicure socks, sometimes in the summer.
It reminds me of when i started with neuropathic pain years ago when the burning was freezing and I used hot water bottles and wheat bags. Now its white hot burning and I use ice packs both during the day and when i am going to bed at night.
Doctors only know what they have come across so i wouldnt take much notice, though I personally wouldn’t think of 2 hour symptoms as a relapse, although I would still think its a weird MS thing - but thank god only transitory.
Same here with this symptom. I dont think your consultant is correct only in that it is probably secondary to your MS if you aren’t very mobile and therefore have poor circulation.
When going through a bad patch of being woken up during the night by freezin feet i wear cotten pedicure socks, sometimes in the summer.
It reminds me of when i started with neuropathic pain years ago when the burning was freezing and I used hot water bottles and wheat bags. Now its white hot burning and I use ice packs both during the day and when i am going to bed at night.
Doctors only know what they have come across so i wouldnt take much notice, though I personally wouldn’t think of 2 hour symptoms as a relapse, although I would still think its a weird MS thing - but thank god only transitory.
Freezing cold feet or even one hand or arm is weird and disconcerting. It maybe the MS or other problems so a discussion with your GP should be the first call. We have a habit of blaming everything on MS.
I got rid of the problem for min of 6 months, 3 times by having a sympathetic block. The neuropathic pain in both legs and feet were also helped and what most people have it for. It is a very painful process so not to be taken lightly. My last block was over a year ago and I am still putting it off despite increasing problems with pain from pressure as well as all of the above.
I have Raynaurds Disease as well as MS (possibly caused by interferon or because my dad had it). It is a circulatory disease and you can check the Raynauds site for further info and assistance.
My GP prescribed a drug which opens the veins to help with blood flow.
Freezing cold feet or even one hand or arm is weird and disconcerting. It maybe the MS or other problems so a discussion with your GP should be the first call. We have a habit of blaming everything on MS.
I got rid of the problem for min of 6 months, 3 times by having a sympathetic block. The neuropathic pain in both legs and feet were also helped and what most people have it for. It is a very painful process so not to be taken lightly. My last block was over a year ago and I am still putting it off despite increasing problems with pain from pressure as well as all of the above.
I have Raynaurds Disease as well as MS (possibly caused by interferon or because my dad had it). It is a circulatory disease and you can check the Raynauds site for further info and assistance.
My GP prescribed a drug which opens the veins to help with blood flow.
Raynaurds is quite common amongst PWMS. And usually effects the parts that are MS related. A low-dose aspirin daily is beneficial to keep blood flowing better. Also, soak your feet in a - not too hot - bowl of water with a handful of Epsom Salts [magnesium] - When you sit down - try to keep your feet moving.
Has anyone else experienced anything like this or similar and also would this be classed as a relaspe? never understand whats a relaspe and not?