Decided on Avonex as my DMT this week, likely to be six weeks until I get nurse appointment to start it. I’m wondering how many doses you get at once (do you get it delivered ?) and how much space it takes up. Size of a loaf of bread? Two packs of butter ?? We’ve got a pretty small fridge that I find awkward to use and I’m thinking it might be better to get a new one. Guess I don’t want to be struggling to fit the food in round the drugs, and have them (and MS) taking over there too! Really interested to hear any experiences on this … Trying not to start worrying about the injections themselves yet, just trying to tackle the practical hassles. Thanks
When I was on Avonex it was 4 small packets about the same height and width and a bit shorter than a small packet of cheese strings (hope this helps)
Hi Becca My avonex is delivered every 12 weeks to my local pharmacy, I chose them to be delivery point as I was working and couldnt always be home. It is delivered by Bupa Home Health Care and the box measures, 7 half by 6 by 5 inches. I just keep them in top shelf of fridge but perhaps if your fridge has a salad box you could use that. The new pen injections are a doddle to use in my personal experience and you soon will be an old hand at giving them to yourself. My avonex is like my best friend it has certainly helped me for 11 years, I do wish you luck with it too. Hope this has been of some help. Joy x
Thanks so much, that’s really helpful I’ve heard lots of different things about Avonex, including some positive stories like yours Joy. I just have to hope I have a good experience with it. I have been shown the new pen and was relieved to see the needle was pretty short, and that you can’t see it going in anyway. Did you have much trouble with side effects?
Hi becca yes after 10 years of using the larger im injections the pens are great. I think we all manage the side effects differently and so I can only give you my personal version lovely. Even after all this time I can still have them but their episodes are few and far between and I do believe its often reflective on how my health is. They always present in same way, terrible shivering, feeling really cold followed by a day of weariness. I wad advised by my then ms nurse to inject just prior to bed give myself analgesics and hopefully I would sleep through any side effects and I still do occasionally inject before bed but only if Ive been out and come in late, personally I do it mid afternoon take some tablets and then if side effects do start.im up nd can wrap up in a throw in front of fire and watch tele till they pass as I find being woke up with them in the middle of night worse as Its harder to create the warmth nd comfort I need till they pass. and they do pass lovely and then you can rest. they can leave your muscles sore and achy if the shivering is bad and more tired. thankfully they dont bother me much now and I truthfully cannot remember how many I had initially before they no longer happened, defo first week but then It would be expected that injecting your body with such a powerful drug would cause it a bit of upset. Im sure there will be others who will offer their personal experiences too lovely and you may. in time be able to relate to them in many ways but how.your body copes with it will also be personal to you too. Good luck and please keep in touch. Joy xx