Afternoon everyone, really hope you’re all doing ok. So it’s not very often I feel like this, but today I feel bone weary of everything that’s going on MS wise, and otherwise too. I have SPMS, had it for the past 16yrs and I’m sick of feeling so bloody ill all the time, there isn’t a day goes by where I could honestly say I feel ok, because I don’t, I’ve lost my mobility, my hands are playing up, the pain is…GRrrr, fatigue is a bloody nightmare, but because of the pain I don’t always sleep well, I have botox for the bladder and after 4yrs of having this, I feel this last time it hasn’t worked, I’ve had 2 UTI’s even though I take a low dose daily antibiotic and now I’ve got 2 prolapses, so need to have a ring pessary put in place, so I’m fed up and just needed to get it off my chest and I’m sorry I’ve done it on here, because my lovely husband who really is amazing hears it all to often. Sorry to off load on you, but I know some of you will know what I’m going through, if you do read this, thank you.
I m so sorry you are feeling so bad. But you do right in venting here.
MS is a heavy companion to bear…25 years for me. Last night I had to call emergency district nurses out to change my catheter. Not sure the botox is helping me a lot either.
And I’m carer recruiting again! one left last week.
I’ve struggled to get anyone to interview.20 replies but it doesnt get very far.
My hands are bad too. Hubby isnt great now he has vertigo.
Eee lass, what I can recommend is sharing your woes with Jesus…he helps me immensely.
I am so sorry you’re struggling at the moment, but truly understand why. MS is a real bummer Jean and you don’t get a rest from it, which is doubled up with the fatigue.
Do you take any pain relief at bedtime, if not might be worth having a word with either GP, nurse or neuro. If you can get a better sleep, hopefully it will help you cope in the day.
Please don’t feel bad about moaning on here, this is the place where we all truly do understand.
Hope you feel better soon Jean.
Thank you for your reply, it seems an age ago that we meet in Huddersfield town centre doesn’t it, couldn’t really do it now and I dare say you couldn’t, which is a shame. Yes I honestly don’t get like this a lot, but it does drag you down at times. I do pray and ask God to give me strength to cope with this, but sometimes even he can’t help I’m sorry to read that the Botox isn’t working for you, it did help me at the start, but this last time, well I’m not sure, I self catheter and when I saw my GP last week she couldn’t believe how many times a day I’m doing that, but I need to. Sorry to hear about your hubby, that’s not nice and how come carer’s are so bloody hard to find, are yo doing this privately ? Anyway you take care, I’m sure tomorrow I’ll feel differently.
Hi Pam, thank you for your reply, the pain meds I was taking are no longer having the desired effect, to be honest the worst thing during the night is the visits to the loo, me and hubby are up 3/4 times a night, which is a ball ache, I self catheter, I don’t want to have to wear a bag permanently, but it would help during the night. thanks again for your kind words, hope you’re keeping well.
Jean x
I’m sorry to read that the Botox isn’t working for you, it did help me at the start, but this last time, well I’m not sure, I self catheter and when I saw my GP last week she couldn’t believe how many times a day I’m doing that, but I need to. Sorry to hear about your hubby, that’s not nice and how come carer’s are so bloody hard to find, are yo doing this privately ? Anyway you take care, I’m sure tomorrow I’ll feel differently.