Bladder...and other newer issues

Hi all

Like most at beginning of diagnosis type journey , continue to torture myself with the what if’s and spend lots (too much time )preoccupied at possibiliities/likliehoods

Finally got hold GP …who wants to see me face to face which is good, but obviously not good in some other respects given visits had ground to a halt by and large and agrees even on phone onward referral to neuro likely needed but wants see me too

Last night had horrid sleep - mainly due to sensations, and a bit of strange twitching in shoulder, and some NEW strange sensation in foot which is not buzzing or vibrating but almost like the feeling you would get if touching a table when laptop is on. All set to increasing anxiety and preoccupation. To add to insult to it all was up about 6 x for toilet which is not usual - even on nights when not sleeping well. Not diabetes related as checked and was thinking that this has happened few times but obviously not joined any dots as nothing ‘else’ going on at same time and blamed various things (hormones etc) then. Now thinking this re lightheaded spells too - which they have blamed on likely migraine/dont know what causes it but again joning dots which if so, means its been around longer than i have been aware

I know bladder probs are common (horrified to read 80% get it?!!) but not sure if would be a symptom or not at this point or this issue. Not got any of severity eg immediate urge , not making it, or not passing anything when I go. In saying that if you go frequently you do run out I assume so cant say if its this or it is a retention problem and know that often worst case scenario is outlined in symptoms

After a night of it, was bit irritated and burny this morning so was praying it was UTI which i dont actually get a lot. Going to ask for antib.x for UTI anyway to rule it out though not got any symptoms re pain, fever, odours etc

When you are bursting of course bladder pressure does get worse but i don’t feel this and what is a low level pressure in bladder area - makes me feel like I need to go but as i say, I can hold it in and have not tried to repeatedly go. It doesn’t get worse or better in severity - just constant

So, would this be an ‘earlier’ type symptom? Reading is so helpful but at the same time tortures you and message is that everyone is different. Are these symptoms always really severe or can they be milder like this

Feel so bad as increasingly tearful at thought of it and then feel that’s offensive to those who endure and deal with it already. I just know i am not going to cope if it is

Hi EML, you know being diagnosed with MS isnt always the shock you might imagine.

For me it was a relief after 22 years of being shoved from pillar to post and seeing 17 different neurologists.

Being told you have MS is a big thing…but a condition thousands of people do live with 24/7

Bladder problems were an early symptom for me. I`ve had a catheter for 8 years and it gives me 90% relief compared to how things were before it.

It sounds like you have a good GP and so let him do his job.

I can`t blame you for feeling all over the place, with muddled anxious thoughts. I was where you are now for a long time.

Hang in there sweetheart…you`ll cope…we are proof that you can.

Love Boudsxx

hi EML

are you aware of the Bowel and Bladder clinics?

you can self refer or ask your GP to refer you.

mine showed me how to self catheterise and it is such a relief knowing that i won’t wet myself for a couple of hours.

also i learned new phrases from them, i have retention and an over active bladder. it’s not a cure but at least i know what it’s called!

good luck and happy peeing!

carole x

Thanks all. Uti negative. Still irritated but slept bit better. More bloods taken and onward referral made. So…we wait

hugs and xxxx

Boudsx