Just over twelve weeks ago in October I went into urinary retention- happened really suddenly which was scary and very rare for my age (26). Ended up being admitted to hospital, catheterised and had blood and urine tests which were clear. Was kept in for a night and then sent home with a catheter with the idea it would be removed in a fortnight as the thought was I had some kind of urine infection despite the test not picking it up. Catheterising was excrutiating. I was exhausted and fatigued with general body aches and pains.
Two weeks came along and I had a trial without a catheter with the District Nurse which failed. Ended up back in hospital under their care and apparently very constipated (sorry if TMI, since this I have no barriers on bladder and bowel convo lol) so they told me to basically take loads of movicol etc and have another trial without a catheter at the hospital Urology dept. Had loads of UTI’s and Kidney infections when I was catheterised too, so tons of antibiotics one after another. Very miserable times.
Cutting a long story short, loads of failed attempts without catheters over the twelve weeks etc so as of this week I have been self catheterising which the Urology nurse taught me to do. Painful but at least I have no catheter.
Did have a CT scan on my bladder which showed a lot of inflammation and a collection of blood before Xmas but with no apparent ‘cause’. I am having a bladder camera tomorrow.
In addition to the above glorious symptoms I have since developed:
A noticeably droopy right eye (Dr referred me to Neurologist last week) which hasnt gone away for about five days now. Eyes bloodshot too.
Experienced the most gripping intense spasm, which lasted about five minutes, in my back and then released but hurt for a couple of days after.
No urges for urination or bowel movements.
Knackered all the time. Did have a period of insomnia a few weeks ago which made it even worse but hopefully that seems to have subsided a bit.
Having freezing cold feet and fingers at times. Predominantly left side.
Pins and needles generally in my left foot.
A weird pulling pain in my left palm which has been intermittent. Pain in tip of third and ring finger.
Previously I have been ‘diagnosed’ with essential tremor which is very noticeable to everyone else seemingly. It is an intention tremor so mainly comes on when I reach for something which I think has worsened recently too. About four years ago I had a bad kidney infection and ended up having a complex partial seizure in the hospital (what the hosp Dr said when I asked what it was) but my own Doctor at the time dismissed it entirely and nothing more got done about it.
Went to the Drs before Xmas who was a locum and terrified him, I think. He told me to ‘keep an eye on it’ and bog off basically lol, so I went back again this week and saw a different Doctor who was great and she has said it is best to refer me to a neurologist. She went to go and speak to a colleague as well, and I have been told if anything changes or gets worse I have to get in touch with them asap. The Doctor who was lovely asked me if I had been on google with my symptoms and I just said ‘well, a bit, but I know it wont help’ and she left it at that but I could feel her concern about my drooping eye. She’s said she was sending the referral off that day.
Have been off work since all this has happened in October. Was very miserable over Christmas but now I just would like to know what it is and obviously for it to go away but that seems wishful at the moment…
I haven’t self diagnosed myself or anything and I’m keeping an open mind but just wondering if this sounds anything like, well, anything…
How long do Neuro appointments take to come through? Is it going to be ages?
Thanks in advance