After being my mum’s carer for 10 years sadly I found my mum dead last week. I am utterly heartbroken.
I just wanted to know if there is anything I can do to avoid a relapse at this time. Also if there is any volunteers wanted for Christmas day in the west lothian region?
Sorry that I can’t answer either of your questions but wanted to send you my sincere sympathies for your loss. Can you maybe speak to your MS nurse/GP regarding preventing relapse?
My sympathies. My mom died around this time last year. If your determined to be a volunteer, try your local MS Society or reach out to local churches. Lots of churches etc are doing lunches etc for the homeless over the holiday period and would welcome the help, especially in this weather.
Surround yourself with the rest of your family if you can as well. This will be a busy and harrowing time with a load of stuff to sort out in the new year.
Hello Paul, You must have been very close to your Mum. My thoughts are with you. You could try the Salvation Army to see if they need volunteers. Regards, Anthony
Hello everyone, I have RRMS. I have been taking copoxine for 15 months now and can report no relapses and it seems to be suiting me. I also have oxygen therapy twice a week which really helps with fatigue. Two years ago I had a fall damaging wrist which was successfully repaired. I also starting experiencing problems with my knee, not sure if it started from fall. After painful last year consultant found I had torn my meniscal in my knee.After surgery he told me because of walking badly on it I had arthritis in it and had badly warn knee down. After what I can only describe as a terrible year of painful walking on crutches, physio which has achieved nothing. Cortisone injection , my consultant said I need complete knee replacement !! He has given me info on op & told me to read it and tell him if I want to go ahead. He seems to be a little reluctant he says he his concerned because of my ms ? Not wanting to put me through something that could exasperate my condition. What he doesn’t understand is , although I appreciate his concern he doesn’t understand how this is taking away my quality of life. I want to walk again without crutches, and live normally again as possible. Iam afraid because I don’t know how this surgery will affect my ms. Please please is there anyone out there in a similar position or has had this done. I really need this awful pain to go away but need to know is this going to make my ms symptoms kick in . I could really do with some feedback & support from any new friends out there .
You have my sympathy. My mother died 2 months ago. We were close, so I know how much this loss must be hurting.
I didn’t have any problems with relapses after mum’s death. As for preventing them, I’m not sure if there’s anything you can do. Stress can aggravate symptoms, so it would be a good idea to have someone to help you deal with funeral arrangements, probate, etc. Probate can be particularly stressful if there’s no will.
As for volunteering over Christmas, the local churches and Salvation Army are good places to start.
Can I suggest you start your own thread. This one was started because of a bereavement, so I doubt very much whether anyone will answer your post with any useful information. To start a thread, you just hit the blue box marked ‘new thread’, you give your thread a title and then post your queries and thoughts.
Paul I am so sorry to hear of your loss. I lost my Mum on the 6th January this year she went into hospital on the 1st and although I knew she was in trouble it all escalated quite quickly and I eventually had to make the decision for them to stop treatment, I to was her carer for many, many years. I was left to do everything, funeral, selling and clearing the house and then my sister contested the will and now doesn’t speak to me. At the same time as Mum was in hospital I went down with shingles. However, I did all of that but did not seem to get a relapse or any worsening of symptoms. I said to myself that I was doing it for my Mum in the way she would have wanted it doing, with care and respect and I also kept in my mind that she of all people would not want me to stress out and make myself ill. Yes I am still heartbroken, I am actually crying while writing this but if you did your best by her and I am sure you did you could do no more. I lost my Dad at Christmas albeit over thirty years ago and I always joked with Mum that she wasn’t to go over Christmas, her reaction to that was - get on with your life and enjoy it as best you can. It will get easier, just go at your own pace and don’t forget to keep talking to her, I swear my Mum is close and listening!
Thank you all for your very kind words.well apart from 1 and you know who you are! I’ve found a local church to volunteer with on Christmas day so all is not lost. I won’t de on my own. Thanks again everyone and hope you all have a fab time and get very very fat and drunk! Kind regards Paul