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anyone else on here who has UC, as well as MS?

Hi everyone, hope you are all as well as possible. After going to my GP after a few months of very loose stools and terrible stomach cramps, my GP thinks i may have UC, so am waiting for a colonoscapy to confirm this, although he said he was reasonably sure as i have all the symptoms. I am wondering if there is anyone on here that has UC as well as MS, and what their experience of both illnesses has been? don’t worry if you don’t feel comfortable sharing though, i know it’s a rather sensitive topic, thanks, love Bex xx

Hi Bex,

It must be me but i have no idea what UC is[somthing to do with the bowel i think but not sure].

Please let me know as i may be able you.

Take care,

Chris.

Bex, I suffer Irritable bowel, similar symptoms to yours. My brother has been diagnosed with UC like you have. Seems in my family it runs through quite a few. Ive been given Colefac which helps with the stomach spasms and buscopan.

From what I gather quite a few msers have gastric problems from the mouth - swollowing - to the bottom.

Hope you soon get treatment as its another thing to deal with.

Best wishes

bren

x

l had similar symptoms and went for all the tests - camera up the bot etc and barium meal - they found nothing except l had ‘rapid transit’ but most of the symptoms colitis/coeliac/crohns/lBS can be part of autoimmune disease linked to vitd3 deficiency.

The tests themselves including the biopsies went well and were not nearly as bad as l feared. And it is comforting to know its not anything terribly serious.

F.

thanks guys. from the research that i’ve done, uc can be serious if it’s not properly controled and servere flare ups sometimes need hospital treatment. also, there can be complications but it’s manageable.

Chris, uc stands for ulcerative colitis, which is an inflamatory bowel disorder xx

[quote=folksongs19884]

thanks guys. from the research that i’ve done, uc can be serious if it’s not properly controled and servere flare ups sometimes need hospital treatment. also, there can be complications but it’s manageable.

Chris, uc stands for ulcerative colitis, which is an inflamatory bowel disorder xx

Thanks for the information.

I have bivertuticalitist[not sure i have spelt it right]but it means there is small parts of the bowel that have pockets in them and parts of the stool gets left in them and causes inflimation.

Take Care.

Chris.

Chris,

lts diverticulitis - and however you spell it - it is still horrid - nearly said a filtered word. Did you know Jimmy Young suffered with it - bet that made you feel better.

Hope you are taking vitd3 [she’s banging on about it again] l am just re-reading one of my books on the subject - still doesn’t make me an expert l know - but most of these horrid tummy/bowel complaints can be helped by upping your vitd3.

How’s the garden growing - lovely sunny weather here.

Frances.

Hi frances, i have bowel inflammation and have noticed that since i started taking vitamin d3 its not as severe,dont know what name mine has, but i know there some inflammation at work,with the symptoms i have.eiher UC or diverticulitis.

jaki xx

[quote=Campion]

Chris,

lts diverticulitis - and however you spell it - it is still horrid - nearly said a filtered word. Did you know Jimmy Young suffered with it - bet that made you feel better.

Hope you are taking vitd3 [she’s banging on about it again] l am just re-reading one of my books on the subject - still doesn’t make me an expert l know - but most of these horrid tummy/bowel complaints can be helped by upping your vitd3.

How’s the garden growing - lovely sunny weather here.

Frances.

Hi Frances.

Thanks for putting me right,why does this site not have a spell checker.

Who is Jimmy Young[or is that you giving your age away]

Will keep it in mind about vtd3.

The garden is coming along nicely soon be ready for picking.

Take Care.

Chris.

I have Crohn’s and MS., they could not control the Crohn’s so I had to have my large intestine removed. I did have a bag for a while but they removed that so not have my small intestine attached to the rectum. Having both does throw up some rather interesting challanges

I went through the whole tubes up and down thing in late 2010 to explore symptoms just like yours. Turned out I was lactose intolerant, but that the IV steroids I’d had in the summer had triggered ulcers and “extensive inflammation” from my diclofenac (something I’d been on without problem for more than 10 years!). I went on a dairy-free diet and started taking omeprazole to cure the ulcers and spasmonal forte to help with the stomach cramps and pain. I tried coming off these, but the pain returned straightaway. I discussed it with my neuro and he told me to stay on them. He told me that lots of people with MS have unexplained digestive problems and that he believed it was due to a faulty central nervous system input to the digestive systen. He told me to take whatever eases the symptoms so I went back on the pills.

The diarrhoea got better with stopping all dairy, but then returned with a vengence six months later. I saw the gastro again - he diagnosed IBS and prescribed loperamide (basically imodium) to be taken every day with the dose at my control, but at least one a day.

Everything’s very well controlled now with the meds, with the added benefit being that I can eat dairy again :slight_smile: [Incidentally, for those people who are interested in dairy free diets - it made no difference to my MS, but did p me off on a regular basis!]

I was taking 5,000iu of vitamin D3 a day and was not deficient throughout this btw.

Not sure how relevant all this is to your particular case, but perhaps it will give you hope that there is a relatively simple solution!

Karen x

Ulcerative Colitis, Teresa xx

hi, Karen, thanks for the info, i really don’t think it has anything to do with diet though, cos i haven’t changed what i eat or drink and have had no trouble in the past. don’t think i could cope with a dairy free diet cos dairy products are one of the few pleasures i have left in life lol. i’m on all sorts of meds at the mo, but nothing seems to help xx