This is my 1st ever post although I’ve been a member for a few months. So far I’m not fully diagnosed but my neurologist has given a diagnosis of ‘probable MS’ based on my symptoms.
My first symptoms back in 1988 were sudden weakness in my legs. I’ve had pins & needles, fatigue, bladder problems, eye problems & walking problems on & off. I also have an inherited heart condition & have developed some severe problems additionally with my heart & am waiting an urgent heart op. Over recent years my symptoms have worsened MS wise & following a pretty big flare up nearly 2 years ago was seen by my neurologist. However my lumbar puncture was negative (I can’t have an MRI because I have a Defib in my chest). This February I had another huge flareup. Vertigo, visual problems, balance problems, fatigue, severe shaking etc & saw my neurologist again then. Haven’t been able to have another Lumber Puncture because am too ill with my heart probs so no full diagnosis & no support services.
Am now unable to walk more than a few feet without severe shaking & am having unbelieveable fatigue. I would so appreciate some support & also anyone’s advice on how to cope with the awful shaking & your experience of this horrid symptom & vertigo too. I’m feeling very isolated as I can’t give the energy to stay in contact with my friends as need to rest all afternoon to cope.