Don't know what happens now


My head is in a spin so please excuse the waffle.

I went to my GP last week because I had been feeling dizzy for about a week. I thought I had an ear infection. I also mentioned other niggles, pain in my left arm and leg, devastating fatigue, problems with my left eye and the fact my left leg sometimes won’t do what I want it to and I have to lift it.

My GP checked my vision (I have double vision if I try and concentrate on something) and my reflexes. She then said it sounded like MS and she referred me to a neurologist. I had never considered anything was seriously wrong and I have been left reeling from this.

I don’t know where I go from here. I want to pretend nothing is happening but I can’t think about anything else. How do you carry on with life as normal? All I do at the moment is think and eat. I can’t make myself do anything.


First things first - don’t panic!!

Yes, you have some symptoms that COULD be indicative of MS, but they could just as easily not be. Even neurologists need a lot more information to make a diagnosis so your GP is only guessing.

Next - you say you don’t know where to go from here - you have already reached the ideal place to be. Here you will find support and like-minded people, many of whom are also in a place without any diagnosis.

Finally, if you do have MS it is not the end of the world. Personally I was diagnosed 21 years ago but can trace the condition back 40 years…I am still driving and walking and going on holiday and all sorts of things that are ‘normal’. You will see that many people are still working.

If you need to talk to someone contact the helpline on 0808 800 8000.